is there any other meds other than nifedipine for raynauds

[adrianhillson]

doctors started me on 20mg quick release then upped does to 30mg slow now im back to 40mg a day quick but still suffering should tablets not stop attacks and im sure tablets keeping me awake !!!!

[Rp321]

There are is the short answer to that but im not sure what their names are (i have tried them in the past).

I do know that you maybe able to find their names on the raynuads website and i think there is a link on this site to it.

I dont know what other peoples experiences are but i find when on medication the attacks dont stop completely, they are just far far less severe and no where near as frequent.

[NickyWickyWoo in reply to Rp321]

You mention attacks... I seem to have this constantly and struggle to keep warm at the best of times. Even in summer

[Rp321 in reply to NickyWickyWoo]

i have them constantly when not on medicatin also.

[hhardwick]

I have found the pain is less severe in fingers and toes since taking nifedipine but joint pain has increased. Not sure if the two are linked though.

[Carol-C]

I have been put on Adalat LA (Long-Acting) tablets but got bad headaches with them, which my Consultant said I would get used to! Well, I haven't! Also, on the leaflet it says you must not take these tablets if you have Crohns disease, which I have. I checked with the Consultants secretary and she had a word with him and he wants me to continue taking them. I have stopped the tablets for a few days and the headaches have gone, but the white fingers and toes are back and I generally feel cold. Anyone else got Crohns? If so, have you encountered any problems with taking Adalat LA?

[adrianhillson]

im having to get dressed before i get out of bed i darent have a bath for fear of having to get out of it shopping in iceland is a nightmare even a visit to my own freezer gonna invest in a zippo hand warmer though think this will be a sound investment roll on summer

[JPhlps in reply to adrianhillson]

I had two bought for me (Zippo hand warmers) and definitely a brilliant gift. They can last for up to 12 hours, sometimes longer and the amount of heat that comes of them is amazing! I would definitely suggest getting them.

[uknlv]

I take Amlodipine for my Raynaud's, I had to many problems on Nifidipine. No problems on the Amlodopine and it helps my Raynaud's quite a bit. Although this time of year it is just a case of keeping as warm as I can and reduce the attacks.

[NickyWickyWoo in reply to uknlv]

Thanks. I must try that one

[foxglove]

I find a high strength ginkgo bilbo ( herbal supplement) helps a lot. Must however be taken for a few weeks before effect kicks in Idealy best started round about Sep. However dont really see why you should not give it a go, but be prepared to be patient and wrap up warm!

[NickyWickyWoo in reply to foxglove]

Thanks. Ill suggest these things to my doctor

[AshtonRains]

Hello all.

I take Amlodipine 10mg per day. Candersartan 4mg per day both for my raynauds if that is any help?

[AshtonRains]

Oh and I also take Sildenifil (Viagra) 75mg three times a day. Its amazing!!!

[NickyWickyWoo in reply to AshtonRains]

Nice!!

[Dancingc21]

I found that nifedipine gave me bad side effects and also tried amlodipine which did not improve my symptoms. I now have an epoprostenol infusion which involves going into hospital for 3 days (duration may differ slightly) and having this drug infused into me for 6 hours ish per day. I have found my symptoms have improved since having the infusion and my blisters on my fingers are now barely visible. Some people just have the infusion in the winter months but some have it all year round, apparently you need it roughly every 3 months but this is my first cycle so not sure how long it will last for me personally. I recommend this one!! Good luck xx

[NickyWickyWoo in reply to Dancingc21]

I've never heard of an infusion. Blisters? I'm getting scared! Can you work with this?

[NickyWickyWoo]

I don't think nifedipine will keep you awake. Anxious maybe? I'm on it and it has made me depressed/anxious. Some folks on here are actually scaring me. My symptoms are getting worse and I'm even struggling in summer to lead a semi normal life. Ulcers...Blisters? anyone lost fingers, toes etc?

[adrianhillson in reply to NickyWickyWoo]

thanks for all the answers got a few things to look at and just quickly the not sleeping thing i frequently find myself awake 40 hours at a time for instance its 3 am

[BIGI]

I take Pentoxifylline ER 400mg 3 times a day. After I had taken it for just 2 weeks, I have not had any Raynaud's flare ups in a month. I was having them multiple times each day. Of all the docs to give it to me...it was my orthopedic doc! I thought that was odd. He said it makes the blood cells slippery! Sounds funny, but it is working!!! I have not noticed any side effects. Also, I use Melatonin to help me fall asleep. Hope this helps. Blessings

[Belinda1960]

I was on Nefedipine but i was changed to Pentoxifylline 400mg and they work much better.