Hi everyone- I have been a member for sometime, but have just hung back and read everyone's post rather than posting on my own. I decided it's time to get serious about this. I have MCTD which includes Lupus, Scleroderma, Raynauds, Dermatomyositis and five more of these wonderful titles that just basically means your going to be miserable most of the time! I have dealt with it pretty well I think. I have a pain pump that pumps Fentayl 24/7, I have done IV chemo for the better part of 10yrs-along with IVIG infusions and the list goes on and on. I have dealt with it, but after noticing my two youngest son's feet and lower legs turning purple for sometime, fear struck my heart! My diseases started with Raynauds as a young child and then led into the nightmare I live on a daily basis. I took them to the doctor to discover what I already knew. They both have Raynauds too! My younger brother has Lupus and what looks like it's turning into a case of full blown MCTD and now my youngest children are following in our path. The research say's it's so unlikely that you will have other family members that will suffer the same fate, but my experience has been so much different! We need to be smart about these diseases and watch those that carry the same blood as we do. The only good thing about this is I have found out early with my children and they won't have to go through the ton's of doctors looking at them like their crazy before getting treatment! The key to a cure is education.....arm yourselves with as much informations as possible! Good luck to you all
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