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Scleroderma & Raynaud's UK (SRUK)
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I get like an electric shock feeling that runs through my body, has anyone else experienced this?

Hi all I'm back again! I keep getting what can only be described as an electric shock feeling that runs mainly through my arms and hands and my legs, it's not constant but some days it's worse than others and can be felt quite strong and often!! It doesn't hurt it's like an intense tingle and sometimes the stronger surges make me itch the skin where I felt it!! I've been getting these for some time and at first it was put down to an allergic reaction to the antibiotics I was on but has continued since I stopped taking them! I have Raynauds and take clopidogrel for this and also now have rosacea on my face, has anyone else experienced these feelings? They don't hurt they are just annoying and sometimes uncomfortable!!! Thanks Jo

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Yes I use to feel like that quite often till the doctors placed me on gabentien-i have raynauds n scleroderma

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Yes, I have had those for years. I call them surges; they start at the top and go through my entire body; so strange. I have not noticed them since I've been on CellCept the last year and a half. I also get surges of "chills", separate from the electrical type of surges. I usually get those when I go to bed. I have no solutions for them; just a manifestation of the disease, I guess. I'm just letting you know that you are not alone in this.

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I get the chills also drink warm water helps

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I had this problem for a number of years every time i asked a gp or hospital i was never given an answer .It used to drive me mad , i also had it down one shoulder and back .i have learned since then it could be caused by the fibromyalgia i also suffer from, hope this helps a little best wishes Lyn

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Hi Lynbw, i know this is quite an old post now. I was wonder what dose of gabapentin ended up helping you (if any). I suffer with Fibromyalgia and i am still in the process of finding ways of managing it.

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Gabapentin made me suicidal

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I have been having I believe the same thing you are having my entire life and I am only 12 years old but I am going crazy over how distracting it is during school. I am on absolutely no medication and I am a healthy girl. I will reply again if I find anything out. All I see on the Internet is that it could be from stress but I am never really stressed. Please email me at emmywolffe888@gmail.com if you could tell me ANTHING about this or if you are having electrical shocks or surges that can sometimes a little cold. The shocks go through my entire body and can last a few seconds. They also sometimes can make me drop what I have in my hand or kick unintentionally. Please email me if you are having familiar symptoms or can help me.

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Hello. I read about your symptoms and wanted to tell you what my Dr. found with me. I've been having the electricity, muscle burning, and shaky muscles and kicking leg bit for the last year. He had a bunch of blood work done and what we found was that I don't have enough vitamin K. You get it from being in the sun mostly and I don't really go outside much. He said it affects the transmission of nerves and that when there isn't enough K, the messages get transmitted wrong or not at all. I have to start taking a prescription dose of Vitamin K and go back in 3 months for follow up blood tests. For me, it could take up to a year to get my level back up high enough. Hope this helps you!! Have some blood work done. I know how terrible this feeling is. I'm just glad to know I'm not crazy!!!

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This is Gma3 again--I think I got the vitamin wrong. I think it is vitamin D. I'll call the Dr. tomorrow and find out for sure. Which ever one it is, have some blood work done. Sorry for the confusion.

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it is vitamin D .. hv the same issue :/

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Hi emmy, I just want to say that I too get these feelings. These "pulses" so to speak, that start in my head and spreads downward. It makes me feel like I'm going to pass out or fall to the ground. This just started a few weeks ago;at least that's when they started getting bad enough to become concerned. Now you mentioned you were 12 yo when you posted& this origanally? I'm 33 and I use drugs. Please please please don't ever get into ANY drugs!!! They are the $ggg%t devil. With that being said ,I want to ask you if you ever figured anything out. And if my symptoms are caused by the same thing causing yours or if mine is caused by the "devil". Ugh I just can't take it anymore. My next stop is the hospital. I really didn't want to go that route due to the fact I'll have to tell them the truth. Which honestly at this point in my life, telling the truth is all I do. I lied enough during my 20 year marriage. If it's something wrong with me other than using, than I need to get it figured out. The U.S. for your time. Please let me know

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I’ve gotten these 2 times in 3 years. I feel fine and it hits me all at once. Yesterday I was at work and felt fine and got this sensation that ran from head down thru body. It doesn’t hurt but it makes me almost fall. I was st work and it made me feel like I was gonna fall and I grabbed on to a cart and held on and slowly got better but I have no idea why this happens. It’s scary when it happens and then for few mnts feel a little shooken up by it.

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i also feel this many times in every day mostly in night can anyone tell me what is it..? And why it happen.? it seem like it give me energy in my body for a second ..someone plz tell me what is it on my id

Sourabsurbhi@yahoo.com

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I have had these symptoms since around puberty, but in my case they are triggered at will. Whenever I am sick or injured I feel a buildup and I can trigger these electrical surges throughout the body while exhaling and triggering a strong emotion (anger, love, fear). I have tried documenting and experimenting with the effects (professional defect as I'm an engineer) and I have measured increases in healing and even amelioration of the symptoms (sickness, pain, anxiety, fever going away almost entirely). A side effect is that afterward I enter a state of emotional apathy and feel mentally exhausted.

From what I've read so far related to neurology and hormones it might be a cortisone surge cause by a self-induced state of stress, cortisone being responsible for an increase in regeneration. I am not sure if that is the case, but it would explain most of the symptoms and side effects, and could be unconsciously triggered by a high stress environment.

Guess I just want more information on this so I can better understand what is going on. Anyone had an EEG or hormonal checks regarding this?

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yeah its the same with me.....i also trigger it at will and also helps me when i have any aches in the body or if am sick, i will trigger it 1 or 2 times and i will start feeling better, and if i keep triggering it continuously it will slowly damp down and after giving it sometime it will again come back to its full magnitude as if got recharged. If i successfully stop doing it for 2 to 3 days and do it after that the first trigger will be really jollty

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Same here! I've had these for years and always wondered what they were. I've been practicing for fun holding the surge up and at this time I can hold it up for ~4-5 seconds without "breaking the flow". I also experience the same emotional apathy and mental exhaustion afterward, as if it's a resource that can be depleted (at least for a time until it recharges). I trigger mine the easiest through feelings of determination and/or anger but they're not always needed.

Very nice to hear that others experience the same thing! Keep this thread up, it's very interesting reading about all you peoples' experiences!

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When I searched for information on the shock feeling, an article popped up from anxietycentre.com. You may want to read it. :)

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I get that electric shot in my fingers and arms and shoots down my left leg

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I have it right now I read it's due to me stopping my antidepressants suddenly it's a weird feeling but I've re ordered them again

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Yes, I've got scleroderma and raynauds. I get this when lying down in bed and it feels like a cold tingle going through my body. A very strange sensation. I also get tingly and numb fingers.

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I am looking for a diagnosis! I get the electric shock feeling in my arms and hands. Both hands “fall asleep” frequently, making my hands cold much of the day. (They do not change colors, like Raynaud patients.) My legs are constantly bruised. They bruise easily and take a very long time (months) to fade. The bruising only occurs on my legs. I saw a vein specialist about this, but got no answers. He was, however, concerned about slight swelling and redness in both ankles.

I am not sure that these things are related. Please share any similar experiences and diagnoses.

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I get it to in my chest

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I experience this daily......anytime anywhere......trust me i am not a troll but it doesn't hurt either it is annoying like you say i am still trying to figure it out too i talked with my family doctor and he said it might have something to do with electromagnetic field's.... It makes sense but i think my case is a bit strange since it is with me 24/7 and i always just thought it was a normal sensation like nerves etc....but i guess not i have only heard of others that have it on and off but mine is constant.... So dunno what it is to be honest i think it might be something otherwordly but that is just nuts to me since i believe in logical ideals(oh and dogs and birds LOVE me and my pets especially my cat and other animals are so calm even they seem dead, eyes rolling in the back of their heads etc when i am around them or touch them it is hilarious to me)

But who knows.......maybe i will never find out about this unsolvable mystery

It is absolutely annoying how i don't have answers

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I've been googling my symptoms for maybe a year now and I've never read anything that's so similar to what I experience than you. I always can feel surges in my body, I would describe it as an electricity type feeling. I've been to my GP who can't diagnose me and I can only describe it as otherworldly as well.. Do you feel it everywhere in your body at all times or does it flare in certain spots when you think? I'm very curious and it's nice to finally find someone who might be able to comprehend what I go through.

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Me i feel it everywhere in im body 😡😡

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How long have you had this? Can you try to explain what it feels like? Also, do you experience uncontrollable shaking sometimes? More specifically in the chest or head?

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I hade it for over 20 y and i didn't found any solution I can only be described it as an electric shock feeling that runs all over my body in my head legs arms all over my body it's not constant but some days it's worse than other i feel burn with it and it make me itch the skin where I felt it!! and now i am living with it and i don't tell anyone about it becausse i didn't found any solution and my doctor said to me that my feeling no one heard about it and in medical their is so such thing as electric shock 😐😐😐 only god can help me 😔😡

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If you find any solution plz tell me becausse i didn't found anyone in my country like me and no doctor know a solution !!! I am living with it and convince my self that nothing wrong and I fully comprehend your feeling and i thank god that i found someone like me

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I will yes. The doctors I've spoken to have never helped me and it gets hard to not be able to talk to anyone who could understand. My electric nerves never hurt me physically but they don't do great for me mentally. I understand how difficult it can be to live with. It's hard to hear you have lived with this for 20 years.. Did they just start one day out of the blue, did they come gradually over a few weeks and kept getting stronger or did something you went through trigger it?

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I remember the first day when it's start I was walking and suddenly I felt this surge i don't know how to describe it , its electric burn surge with no reason in all my body and i told my parent and went to the doctor i had a full medical test to all my body even i have done IRM for all my body i paid over than 5000$ for medical test and i was in a very good health nothing wrong and in the same time i used to have Sweaty Hands also ! And it getting stronger every month till i got uset to it and when I think or study i fell it stonger ! I don't know what to do and i give up 😔😔 i don't talk to someone about it i wish i can die and ask god for the reason ! i thing that the reason is nerve damage and it will never be repair

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My uncle is a smart doctor he his responsible in a big hospital in USA i told him everything about my situation and all the medical test i have made he told me that in medical book that feeling don't exist 😡😡😡😡😡 that is why no doctor has a clear answear if they don't be abel to see a bad result in medical test than they cannot help us !!! No one can fell it 😔😔😔😔 just don't think about it becausse it will never stop ! I wish a doctor fell it sow he can found a solution 😔 i am living with it every dayy but somedays i don't fell it !! 🤦‍♂️🤦‍♂️🤦‍♂️🤦‍♂️🤦‍♂️🤦‍♂️🤦‍♂️🤦‍♂️🤦‍♂️🤦‍♂️🤦‍♂️🤦‍♂️ i am so glad that am not the only person on earth

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Wow yeah I completely agree with everything. Mine started when I was 18 I think and now I'm 20 and still I break down and cry that I have all these feelings in my body. Life has already dealt me a load I can barely put up with and this on top of it makes life a not so enjoyable ride. I believe in god too, I used to believe god gave this to me since I developed it when I went through a spiritual awakening and started to believe in god. Now I think it's probably just nerve damage and now I beg God to let me die over and over. It's too much and I'm a very sensitive person. It makes me feel like I'm cursed because the feeling influence every decision I make because they flare up every thought I have.

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I give up to find any solution but i didn't give up on life ! I used to say i wish i had a disease and people know about it ! You need to fight it in a mental why and abel to continu your life you will get into dep depression and no one will help you trust me i have it over 20 y ! The doctor will call you crazy because they don't know that felling !!! I know what you fell but the only solution is to forget it even when it's cum when you think or study or work or play football ! I stoped enjoying life it's normal fight it mental because when it begain it will never stop 😔 i wish i can help you but i thank god that i am not alone ! Don't let it break you 🤗 it begain with me when I was at 6 y ! It will never kill you but don't miss life because of it i know it's hard but till now that is the only solution fight it mentaly

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Does it flare up more with stressful situations?

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Mine tends to always be the same, when I'm alone and with my thoughts is when I notice it most. When with others and invested in conversation I seem to be able to ignore it.

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Of course it's flare up in stressful situations !!! I don't know the problem 🤦‍♂️🤦‍♂️

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I experience these and other symptoms and I have ms and fibromyalgia.

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Me i had those for over 20 y and i dont know their cause my doctor didn't find anything wrong 😐 and i am living with it 😐 does anyone know what should i do ?

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I think I might have this idk though. Like I'm just chilling and then I feel a weird surge that doesn't hurt but it's really unbareable. I usually feel hot when it happens and I can usually stop it by blowing the fan on myself. I noticed it comes when I get nervous.

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It goes throughout my whole body

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Me 2

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Did someone found any solution ????

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