I'm am going in for iloprost anyone had it before and did it help

[Billyboy240863]

Iloprost

[Neonking]

EE what? Never herd of it sorry

[JayneO]

I have Iloprost yearly, and find it a great help with my hands. They are certainly more flexible! Still have a Raynauds although I don't think it's quite so severe as it was. Not particularly a nice drug to have, but stick with it the end result is worth it. Or at least it was with me, but we are all different. Good Luck let us know how you get on? Regards J

[zenabb]

Iloprost tries to dilate the blood vessels to allow some healing to take place. It helps a lot but is not a cure. If you have headaches during the procedure ask for paracetamol. It may make your jaws ache when you start eating but the pain does not last.

[GlasgowHen]

I have it for 3 days every 4 weeks. Helps a lot. You will feel a bit rubbish as it is infuses but once it is switched off you feel much better very quickly and hopefully a bit warmer. Ask for pain killers and an anti sickness before the infusion, helps a lot and makes it more bearable.

[Billyboy240863 in reply to GlasgowHen]

How long do you get this treatment I have Togo in for 5 days 8till 4.30

[bealepup in reply to Billyboy240863]

Ihave it over 5 days for 6 hours, not too pleasant but it helps. Make sure they give you paracetamol and anti sickness pills before you start. Hope all goes well

[Billyboy240863 in reply to bealepup]

Ok thanks

[GlasgowHen]

Mine runs for 6 hours but I am usually in the hospital about the same length of time as you per day if not more sometimes by the time they have found a vein to get a cannula in etc. hope it goes well, I wouldn't be without it

[Billyboy240863 in reply to GlasgowHen]

Thanks

[Rp321]

I have it for 5 days every 3-4 months, it's not the best five days but it's worth it for me as it works so well. Not sure what I would do without it now.

[tanya1981]

Hi there, for those of you on Iloprost, did you try Nifedipine first and if so what made you switch to iloprost?

[Heather8231]

Hi, I have iloprost every six months and like others have said it's not pleasant but it's well worth it for the condition of the skin (finger ulcers) and helps you to warm up quicker during a raynauds attack

[Billyboy240863 in reply to Heather8231]

Thanks