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Scleroderma & Raynaud's UK (SRUK)

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Problems with grip

JPhlps profile image
15 Replies

Whether I am having an attack or not, I seem to have trouble with grip. I am constantly finding myself dropping things, big or small. It's becoming a bit of a problem and my mum suffers the same thing, though she does not have Raynaud's or Scleroderma.

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JPhlps profile image
JPhlps
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15 Replies
zenabb profile image
zenabb

I have exactly the same thing and I have had it for years. I have to be very careful when I am holding things in my hands as some may drop off without me noticing it. I dropped my passport in that way at the airport. I have a special key holder I got from the RSA to turn keys easily and it does. I also have gadgets to open jars, cans etc. I got used to it.

Emma2 profile image
Emma2

I think I drop things more than I used to - often when I'm not having an attack! I have raynauds and carpal tunnel syndrome as well so my hands often feel quite weird (numb, pins and needles, tingling sensation). I suppose I am more careful when they feel like that - maybe that's why I am more clumsy when they are ok??!!?? Who knows?!?!

uknlv profile image
uknlv

My grip is much worse, I always drop things and it is very difficult to pick things up. I think in my case that it is due to the skin tightening on my hands. It is the only place this is happening that I can tell, I wish it were the rest of my body, no more flab lol. But I to have to keep an I on what is in my hand as I will drop it without knowing. Another thing is I will get a weird twitch and fling things at times!

Carol-C profile image
Carol-C

Hi - I too have problems with my grip. I also have carpal tunnel syndrome; I had both hands operated on 4 yrs ago, but my left one needs doing again (I'm left-handed, so very awkward.) I'm finding it very embarrassing when I have to pay for items in the shops, as it is awkward getting money out of my purse; the sales assistants seem very unsympathetic! Can anyone else identify with this problem?

HelenL profile image
HelenL in reply toCarol-C

Exactly the same- I often ask my 5 year old son to help with the money- I feel so embarrassed! Can't straighten my fingers or make a fist (fixed into a claw like shape)so can't pick money up or when it is given into my hand by a sales assistant, I can't do anything with it. The skin is shiny and tight and uncomfortable.It also seems to burn in places.

Anteater profile image
Anteater

I will never never wash or dry up a glass - does that say it all !!!!!

Rp321 profile image
Rp321

I also have huge problems with just randomly dropping things - its really annoying! No warning its one min they are in my hand and the next its on the floor. It happens even when my hands are not having a raynauds moment.

Its facanating to see that others have this problem to - i didnt realise it was connected but maybe it is if you guys all do it to.

pudley14 profile image
pudley14

I don't have raynauds but do suffer with poor grip. I'm unable to bend my fingers fully to make a fist and struggle to rotate my hand to collect change when buying stuff. Currently having Physio to see if anything can be done.

GreenJadeDragon profile image
GreenJadeDragon

Hello,

I think I have to agree with most of the people already posted, I'm usually OK with grip but when my hands suffer an attack I find clenching my fists and maintaining tension in my hands to be very difficult. They tend to become quite floppy and most unco-operative. Keys are a nightmare at the best of times but when cold, I've taken over a dozen full attempts to open my front door during last winter.

I also have hypermobility syndrome which for my hands means I can stretch my fingers further back than is considered to be "normal" but when suffering an raynuads attack doesn't change this but makes the tendons/ligaments feel very sticky and tight. I think that is down to the lack of blood supply.

JPhlps profile image
JPhlps in reply toGreenJadeDragon

Thnk you for your post. That whole stickiness feeling with the ligaments and tendons is exactly what I feel when having Raynauds moment. Maybe this could be some sort of effect from having it, I have found these gel packs that you can crack a little metal plate inside and they heat up for about an hour. Great to use in the winter months.

Sue_Hazel profile image
Sue_Hazel

I get problems maintaining a grip for any length of time (a few seconds in raynauds inducing conditions; wind, damp, cold or humid environment) but then I am trying to do silly things with Raynauds, like rock climbing..

Leenie profile image
Leenie

I am constantly dropping things. I have always thought that maybe there was a connection with Raynauds. Perhaps I don't feel the thing I am picking up as well as I should therefore I am not gripping it tightly enough! I am not allowed to use crystal glasses for my wine!

JPhlps profile image
JPhlps in reply toLeenie

I know the feeling, where I work I am known for dropping things, thus I have been told not to pick up anything with glass or move any glass shelves etc. Can be a bit annoying when something needs to get done but better safe than sorry. Thanks for your reply.

JoyH profile image
JoyH

I use heat packs too with the raynauds and always use a hot water bottle to get to sleep on cold nights also i do yoga stretching very slow and slow deep breathing to oxyginate the whole body it does help with the warmth Ive had raynauds for 30 years

joyh

frillyhilly profile image
frillyhilly

I know that this question wasn't asked by me - but thank you everyone. I just dropped a half-full bottle of lemon all over the floor. My hands simply stop holding things. It's been happening for a few years now and just seems to be gradually getting worse. I'm not sure how the start of this relates to the diiagnosis of my Raynauld's and I don't know what prompted me to type "dropping things and Raynauld's" into google - but I'm glad I did - at least I now understand it.

I also have a problem with not letting go, especially of mug handles - I put something down and then pull it over when I take my hand away because I haven't fully let go. I think this is the same sort of thing as dropping things - it's like the brain and hands don't "talk" to each other.

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