Food malabsorprion

[Tmontana]

Another question! Anyone been diagnosed with food malabsorption .. I'm sure this is a problem with my schleroderma but still waiting to see gastro ...

[Clangerscat]

Hi Tmontana, are you struggling with your weight? I’ve never been officially diagnosed with malabsorption but I think many people with SSc have trouble maintaining weight at times. I have in the past had to have nutritional drinks to keep my weight normal but did have a lack of appetite at the time. It’s fine now, hope you get some answers soon.

[Midgebite21]

yes it is if you have issues with your GI tract

[JuliannaGrandinetti]

for me going to the bathroom results to one thing one time and the other the next. Stress weather and of course what I eat.

Please ask your gastro doctor about cholestyramine. It is a dietary suspension powder that gets dissolved in a small amount of water before meals. It allows your body to absorb your food as well as helps with the consistency of output. When I hadn’t my ostomy bag and to this day, I will at times see full pills in my output. The body doesn’t absorb after the gut has been affected by scleroderma. I have had a total colectomy from complications with ulcerative colitis and have been on the suspension for four years seems to help but I still deal with the ups and downs of malnutrition having to take Imodium daily.

[Tmontana in reply to JuliannaGrandinetti]

Thankyou so much for your reply ! This is a new issue for me and don't know what's going to happen in the bathroom one day to the next .. I will mention this medication when I get to see gastro..