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Scleroderma & Raynaud's UK (SRUK)

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đź“ŠHelp SRUK Help You: Take Part in our Patient Registry Survey

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SRUK have launched a Patient Registry Survey, which asks for your feedback on how you might feel about sharing health information.

A patient registry would:

đź“‹ Help us advocate for improved care

đź“‹ Improve access to treatments

đź“‹ Improve patient outcomes

But before we can do it, we need to know what you think.

Let us know your thoughts here:

surveymonkey.co.uk/r/8NH8Z9N

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Kilncadzow profile image
Kilncadzow

Happy to take part although I was treated for scleroderma from 1976-1986. Still have Raynaud’s and slightly deformed right hand as a result of scleroderma.

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