I want to apologize if I have offeded anyone by posting anything "faith" related. I don't wish to push that, it wasn't my intention.

[MARCY]

Please let me know if I have offended you, as I would like to hear your comments. I thought this was a place where we help others feel better about theirselves and encourage with different solutions that have helped us in times of need. This wasn't meant to be religious in nature. The website I offered has content other than faith based, cute & funny videos, just uplifting things for your spirit if you are having a bad day. I have several other sites with humorous sayings, a site with everything you could imagine, quick comebacks for ignorant people that don't understand different...etc! I only wish to be a help with the things I have dealt with for the last 14 years, and years before I was diagnosed...having unnecessary surgeries!

[MARCY]

I feel this might not be the place for me to contribute my experiences having Raynauds & Systemic Scleraderma for the last 14 years. Also having 2 unnecessary surgeries before the scleraderma was diagnosed by me, because every Dr. I saw overlooked all the signs. I have had my posts removed by management because I used the word "faith". To me, "faith" means whatever you use to get you through the day, not just Jesus or The Bible, but anything you use for a prayer guide, even just speaking to others who are dealing with the same situation. If you wish to contact me, please email me at marcyrucilez@yahoo. Also Facebook, Marcy Rucilez, Frisco, TX...bet of luck to everyone here.

[Revsma in reply to MARCY]

Marcy- I don't feel you should back down when you talk about your faith. Too many people are doing that and that's why the world is going to hell in a hand basket. There will ALWAYS be someone who would disagree, possibly because they're just disagreeable people. If they truly are offended, then they don't have to read it. I've been sick for 22 years and still can't get a straight diagnosis. I've had surgeries and have been to more doctors than I count. If it wasn't for my faith & trust in God and the ability to pray, I wouldn't be here. NOW, for those who I have offended now while reading this, please read somewhere else-I have the right to my opinion and to express it. I will not deny my faith because you're unhappy hearing it or reading it.

Have a good day,

EJHK

[GinaAnn in reply to Revsma]

I agree!!!!!! I got my wrists alspped along with Marcy, but I fred back as nice as possible, to the point.

[MiFam in reply to MARCY]

My Mother suffered with Raynaud's and Scleroderma for 27 years and passed away 9 years ago at 57 years old. I was diagnosed with Sjogren's last year at 48 years old and it seems to be getting worse. You certainly need and deserve God's blessings and much faith to get through your days. So may God bless you and all who suffer from Scleroderma, Raynauds and all autoimmune diseases :))

[AliW in reply to MARCY]

Marcy - well done for speaking out - you hang inb there you are an inspiaration God Bless

[MARCY]

THANK YOU REVSMA! It was this organization who sent me the message and deleted my messages to whomever I offended. The funny thing is, I offered faith, karma, the universa, or whatever they believed in. But this organization still deleted my messages. They've also removed my ability to get into here automatically and they do read every message you post, there is nothing private, FYI

[asilva80 in reply to MARCY]

good to know

[LynnCox]

Marcy, I am a charismatic evangelical Christian and like many members here I am in the UK. Even as a Christian living my faith, I did find your posts about faith a little OTT and "in your face". People do not like having sensitive subjects like faith thrust in their faces, no matter how passionate you are about faith. I hope you can continue to share your experiences with these conditions.

[dordle]

This has been one of the most interesting conversations I've read on here. Some people will find it hard to accept that others can totally have faith in something, that they would want concrete proof of. I have no particular faith, but do believe people are entitled to their own opinions, and it is always fascinating to hear how others feel about things. I certainly haven't been offended by anything I've read, and anyone who's lived with scleroderma for many years (I was only diagnosed 5 years ago) is entitled to say how they feel.

[MARCY in reply to dordle]

Thank you as a person dealing with the diagnosis for 14 years and knowing I had it 4 years prior, yes I try to help others have a better day or outlook, letting them know what helps me get through each day. I still haven't heard who I offended unless it was Lynn who was a christian herself. I'm saddened to here we can't include everything that may help others, I'm saddened to know I never even put this faith information on my profile, but got slapped anyway. It felt like I was a child putting her hand in the cookie jar. This Association says we can help with health related information, just nothing to do with any faith based help. That was unusual to say the least.

[AliW in reply to dordle]

Dordle thanks for posting - your comment is interesting - & biblical - as actually FAITH IS ...Hebrews 11:1 Now faith is the substance of things hoped for, the evidence of things not seen. ( found in teh New Testmanent ) Take Care - try the bible ... you won;t be disapointed

[dordle in reply to AliW]

oh dear, I didn't word that quite right and made myself sound quite an atheist! I am interested in hearing, reading and watching things on any religion, a fascinating subject. Thanks AliW I will get the Bible off the shelf and read the text.

[AliW in reply to dordle]

dordle ... you do just that ....and turn a few pages to Hebrews Chapter 13 verses 5, 6 7 & 8. the bible is Gods way to speak to you - read it with an open mind - the won't help on shelf needs to be in your hands - you wait & see ....so glad you are not offended .... an open mind = an open heart. Hope to hear from you soon- AliW

[overcomer]

hld13

Thanks so much for sharing your thoughts, I had never heard of scleroderma, i cried many days and nights, but I decided to keep praying , singing, and playing my piano. I have decided not to be a victim and because of my faith Im going to be alright. And I believe all of us are going to get better. Again thank you.

[Revsma]

This HAS been interesting...I guess I just tire of the fact that I Get criticized for mentioning my beliefs which happen to center around ONLY God, yes, the one in heaven, the one in the Bible. Everyday everywhere people use MY God's name in vain and think nothing of it. I do! I was certain my post would be deleted because I spoke up. I'm not a fanatic, I believe what I believe and pray for a lot of people. I'm ill myself and pray for strength to deal with what I'm going through. I must admit, I was at the end of my rope before I turned around, but I'm glad I did, my pain has at least been tolerable. Why do I think I have this? Because I'm being used as an example-to who or for what, I don't know. I'm pretty much homebound and am down to 4 friends who don't call that often but that's OK, I don't want to talk that often. The fact that they still call is enough for me. Everyone who meets me say they're amazed at my humor, the way I handle things...It's not me, not at all.

Hang in there.

[AliW in reply to Revsma]

Resvma - Thank you you for posting - my heart goes out to you - I understand how you feel - Our Lord does know ALL things - thank you for sticking up & speaking out God Bless Ali xxx

[lynbw]

You haven't offended me , nice for someone to say how they really feel without having to be politically correct all the time . keep well all and praise be to god lyn

[dawng8500]

Marcy, our spiritual well being is just as important as our physical. I accept that there are those who do not share this. They are also (usually) VERY sad people. My faith helps me to understand how to deal with my illnesses (Raynaud's and Systemic Scleraderma). Do not let anyone tell you different. As many have written to your comment, "Praise be to God, and blessings to all who are here".

My knowledge that Jesus is with me is very reassuring. He has helped to make me appreciate all that I have. I am NOT a victim, just a person who has an interesting life journey!

[joba]

Without my faith, I would never be able to deal with this disease. More power to you, Marcy!

[michele27]

I am not offended with what you have to say, even it is about your faith, where would we be without God to help cope with our health issues. I would be pleased to here from you.