Does your raynaurd's cause pain?

[Blue_feather]

Just that really. Mine does, but there are two people l know whose raynaurds is painless. Curious as to why this might be.

[Langley-Loper]

Yes, painful, moreso as the blood starts coming back

[Midgebite21]

yes my raynauds is painful, some attacks more than others. The very painful ones also cause me to have loss of function of my fingers/toes as they go stiff and very numb, you can’t use them properly. I think it depends on how severe the attack is and how deeply the circulation is affected. If it’s quite superficial it doesn’t hurt as much it’s more a colour change.

[amd21]

Mine did cause severe pain that at times was so bad I cried with the pain. Now it is fairly well controlled with meds and moving 500 miles south I still get attacks but much, much milder.I have had radial nerve damage in the right hand and frostbite on that hand prior to developing my scleroderma like autoimmune disease sothat may have caused central sensitisation to stimuli in that hand which may be why the pain is severe

[Blue_feather]

Thanks for replies so far. I wonder why some don't have pain at all. One colleague's fingers go completely white and yet no pain at all when circulation returns. My fingers only go white to the first finger knuckle, but lots of pain during attacks and even when l am not having one at all. It makes be wonder what is going on underneath the skin.

[roseter]

I have had Raynauds for 34 years with a lot of pain. To the point that i would have a panic attack because I couldn't stand the pain. Recently its got worse and now the thumb is also involved and halfway down my hands. You do get used to it. The sooner you get the circulation back the less painful it is.

[Shorty100]

Definitely, the winter is awful, I have Nifedipine which only helps slightly and when I put my purple fingers and toes in warm water, the pain is rotten until the blood starts to circulate. Silver gloves also help slightly and thermal insulated socks too, but my fingers go like balloons and I also get ulcers. This is when the pain can be horrendous as I cannot bend my fingers and they constantly throb. My Rheumatologist just told me to keep wearing the gloves and I can increase the medication when it gets likes this, so please don't worry as you are not alone. Just count the months until warmer weather.

swollen fingers

[Jacko37]

My fingers are always really painful, using them is always really difficult, a total nightmare! Work is really difficult and no one understands. I only get the white fingers in the summer, in the winter they just go red and black. I feel your pain!

[Poshcards]

mine is secondary Reynaud's connected to my lupus, as long as I take my nifedipine everyday it is controlled now xx

[wednesday]

Yes I find it painful, it's when the circulation comes back it really hurts. When they are numb can't feel anything.