Does anyone have burning feet especially at night?

[Jelly1bean]

This is my first post. Last year my Dr diagnosed Raynaud's, then this month lupus, then rheumatologist labs came back scleroderma. Does anyone have burning feet at night?

[UCTD]

Yes I do, and have small fiber neuropathy on Gabapentin and Duloxitine which takes the edge of it. Very irritating and disruptive at night

[Hidden]

I did have it for years - it was how my Sjögren’s started and I was told that it was Raynaud’s at first - later this changed to small fibre neuropathy although I do have Raynaud’s too.

[Fluffy2]

Hi I have been making sure I sit in the direct sun for 20 mins a day (where possible) with as much skin exposed arms, legs face, neck and upper chest, as I can but keeping warm too. This will allow natural but D production without sunburn. Dont wear sunscreen so dont do this at midday.

You could try this too which is wholly natural.

[Fluffy2]

Apologies Jellybean I replied to the wrong post..

[Hidden]

Yes unfortunately I to having burning feet. 24/7 the soles of my feet burn, it gets worse the more I walk about.

My hands burn all the time and the more i use them the more they burn, unless I go into a different temperature and it's red, blue and white, I'm going to speak to my named nurse about it, may even consider a infusion.

Good luck

[Barnclown]

Yes. My version of this is due to simultaneous raynauds & erythromelalgia (EM). EM is a called the ‘burning disease’ and can occur alongside raynauds in patients with autoimmune conditions. Here is a link to the EM info on the official SRUK website:

sruk.co.uk/scleroderma/eryt...

Take care 🍀🍀🍀🍀 Coco

[Barnclown in reply to Barnclown]

Ps because my raynauds is simultaneous with erythromelagia i have to be very cautious about vasodilation meds, eg just 3 days on nifedipine made my erythromelalgia burning permanently worse. So my rheumy is avoiding iloprost infusions too, and has me on low dose losartan instead which damps down my raynauds but hasn’t made my erythromelalgia worse

[positivedaybyday]

I had burning hands & then burning feet. I had to use ice packs just to try & sleep. This was the start of my Scleroderma in 2017. Make sure you have a good Rheumatoligist & they will guide you through the issues. The right meds to eliminate the pain is essential & dependant on how the disease progresses your Rheumatologist will make the right decisions. Mine was very aggressive but after specialist treatment I'm improvin. Good luck. Xx

[Jelly1bean]

Thank you so much for your comments.

[Barnclown in reply to Jelly1bean]

You’re welcome jellybean. I hope you figure out what is causing this & how to best minimise it

[Hidden]

Hi Jelly

Is it your whole foot or just the souls. I get hot souls very hot at time but i think this is long term spinal nerve damage. So how is your Back is a thought .

Be Mello Max

[Jelly1bean in reply to Hidden]

It's the soles of my feet and palms. I do have have scoliosis and constant back pain.

[Hidden in reply to Jelly1bean]

Hi Jelly

Well that a shared experience then as I have back injury since mid teens and had back ache ever since Mostly muscular until something moves and then the nerve thing cuts in and had hot feet a few years now it was like spread out dots at first. I used to think i had bits of sawdust in my socks or in-souls and am pretty sure its a long term irritated nerve affect, i think my nerve has given up on a lot of pain signals it used to give and tells my brain its not happy in other-ways of late, Have never had it in my hands i would guess it depends how height up the back pain is. It seems feasible enough to me. I just got C.T. scan images through from rib break and it covers my back just had that assessment thing they said now lower back abnormalities spinal curves are normal think i might post a picture they really should not lie about examinations.

Hope your heating issues are not to bad dose it affect using touch phone

Peace and tranquility to you love

Max