Scleroderma & Raynaud's UK (SRUK)
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Does anyone get heart palpitations?

Does anyone get heart palpitations? I get them just after I fall asleep and they wake me up.

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Yep

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😢😱

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Yes, when i lie down for my daily nap too, and during syncope flares (these happen more frequently daily when my autoimmune diseases are flaring)

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😱😢

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Yes, often when I lie down for the night. I'm not sure if I feel them more then, or if there are more.

I think there is more to be learned about the scleroderma heart!

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😢😱

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I've started to get them over the last month. . Not lying down, sometimes when I'm sitting....i'm also a bit breathless. Haven't had them before now and unsure about it 😕

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Yes they are a worry aren't they. I shall talk to my Drs

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Yes, me too....hope it goes well for you....

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Had the same with some breathlessness when walking up slopes/stairs. Referred to cardiac Dr who diagnosed Atria Fibrillation, not associated with Scleroderma. Often causes irregular/fast heartbeat.

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Atrial sorry!

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Hello, yep, I also get them after I have woken up!!! and I get shaky too! As for breathlessness I get that just by having a shower, oh what a multitude of symptoms we get, never ceases to amaze me, actually what we are all doing is working our way through the medical dictionary, haha, take care xx

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Yes indeed. it is all very confusing.

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Yes. I've had them at night for a long time bu have always considered them to be caused by the Amitryptiline. However, more recently I've been getting them when I "nod off" during the day - I am tired at the moment - don't seem to be able to get a good nights sleep - so I've been wondering if it's the palpatations are being made worse by the hot weather and/or by being tired. I have primary raynaud's.

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It’s such a worry isn’t it.

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Yes. If I am already deeply asleep when it happens, I also feel light-headed, sometimes sick, and just feel "out of myself". This helps me:

1) I tell myself it's just (I say "just???") palpitations. Also, that there is no intruder that has set my heart racing.

2) I just move a little - like settling down. I find moving my head is particularly helpful.

3) I then take some slow breaths, not deep but controlled, and try to see myself somewhere peaceful - in my mind I have a forest walk leading to a waterfall and pool.

4) Usually I will quickly relax and fall back asleep.

If I do not fall asleep but instead still feel from "out of sorts" to "very worried", then I may have to get up (sitting up may be enough, but I cannot sit in bed). It seems to be all about change so that the mind can normalise the body. This is what I do:

1) I move properly in the bed - changing positions fully. I usually move into a position from which I can get out of bed.

2) Again control my breathing if possible and calm my mind.

3) If it is still not working, I get up and move slowly about with a walking aid

4) If this is still not enough to settle myself, then I get a hot drink (oh for the simple days of a glass of tap water).

It's a bit like recovering from a bad nightmare.

I hope this helps you too.

I have a reason for my palpatations (my medication - I checked with my GP). However, I remind the GP periodically just in case they want to change their mind about them. xx

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Thank you so much for taking the time to explain all that to me, it is very kind and I really do appreciate it.

Of course my worry is that it is Sclerodema doing its thing. I am seeing my specialist in a few weeks so will mention it to him.

Thanks again Axx

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Glad to help.

Wishing you a good appointment , N xx

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Yes I do I’ve been referred to cardiologist for further tests after being told I gave a leaking valve but need to check for further blockages in arteries

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Thanks Ncoff. I hope you are ok. AX

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Yes I do, especially after eating. I know there isn't anything to be concerned about in my case though. I've recently been rushed to hospital by my GP a few times as a result of very low potassium levels in my blood. Each time they've done an ecg because of the possibility of heart failure. All fine

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Thanks for your reply. I wish you well. Ax

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