Does anyone else get really bad pains... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Does anyone else get really bad pains in their legs?

Lisa_Harrison_Lovatt profile image

Does anyone get really bad pains in their legs anytime or the day but mostly at night, in the morning,or after you have been for a walk?

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Lisa_Harrison_Lovatt profile image
Lisa_Harrison_Lovatt
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16 Replies
Anteater profile image
Anteater

Yes, I do especially upon walking couple of steps and the pain starts ....

Anteater profile image
Anteater in reply to Anteater

also sitting and standing cant do either for long ...

Anteater profile image
Anteater in reply to Anteater

Also find it very difficult walking upstairs and gradiants ...

Lisa_Harrison_Lovatt profile image
Lisa_Harrison_Lovatt in reply to Anteater

ohright i have the same problem do u find anything that helps the pain go or doesnt nothing seem to work

RosemerryVenet profile image
RosemerryVenet

Same here.

JaneP profile image
JaneP

I get painful legs quite often, even when lying in bed at night the pain keeps me awake.

Lisa_Harrison_Lovatt profile image
Lisa_Harrison_Lovatt in reply to JaneP

thats not good then ive got the same problem im not on any medication for mine either but i might go the doctors to see if they can give me anything for it i hope u do get better with u legs aswell its not good when your in pain and can,t sleep

zenabb profile image
zenabb

Yes, I get pains in my legs up to the calf and including my feet all the time but particularly after I have walked a little way particularly up an incline. I have a disabled blue badge because I cannot go much more than 100 yards and I need a car to get about. I often have to put my feet up. I have an armchair with a foot stool. I take care of my feet to make things a little easier.

Lisa_Harrison_Lovatt profile image
Lisa_Harrison_Lovatt in reply to zenabb

ohright thats not good how far do u walk be for your legs start killing mine starts even if i have only walked a few steps or even for about 30 minutes yeah i find it better with transport its not very good if you can,t about where u want to go does putting your feet up help

Ruth462 profile image
Ruth462

Me too but thought maybe it was varicose veins rather than my Ray & Scler.

Often get cramps at night too especially if I've gone to bed with cold feet.

Lisa_Harrison_Lovatt profile image
Lisa_Harrison_Lovatt in reply to Ruth462

ohright do you do u still think it is that then...ohright do you i find it gets worse at night then you have trouble sleeping i hope u do manage to get rid of the cramps soon

zenabb profile image
zenabb in reply to Ruth462

I get cramps too and they went too bad I went to the GP and he gave me quinine. It hasn't eliminated the cramps but it is much better.

Lynnie profile image
Lynnie

I still manage sports , but in the evenings the pains in my legs are really bad....i have never found any medication that helps. I`m newly back in the U.K. , and unfamiliar with the medical system, so any, and all advice would be appreciated.

bookworm profile image
bookworm

hi i often get pain in my legs, but my right mostly,sometimes get cramp in my legs, mostly at nights, sometimes my leg, stiffens up jerks, sort of spasms, pain, then collapses on the floor, does anyone else suffer from the same sort of problem?

grannyannie profile image
grannyannie

Hello Lisa, I have recently been having pain in my legs, think it's due to poor circulation. I have been taking Propanalol, prescribed for essential tremor, was helping the tremor, however I have stopped taking it as the pain was really quite bad and this can be a side affect of the drug. The pain is not so bad now. I don't think it is actually the Raynauds but more poor circulation. Numbness in the feet and swelling in the ankles. I find rotating the ankles regularly and moving the feet up and down helps a bit, also massaging them. Don't know if this helps.Take care.

alwaysfreezing profile image
alwaysfreezing

my raynauds started with pains in my left leg ten years ago it still comes and goes good luck

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