Hi, I'm new to this site and sites like this in general but I'm at a loss and seeking some advice.
Over the last year or so I've been diagnosed with an undifferentiated connective tissue disorder, Raynauds syndrome, Sjorgrens syndrome and I also have rotated patellas (twisted knee caps). I should also mention that I have quite bad emataphobia due to a procedure that went wrong when I was a child which causes severe anxiety attacks when I feel nauseous.
This is all something I've pretty much known about since I was a child, but only really looked into getting a diagnosis when things started to worsen about 2 years ago.
I'm only 28 and at the start of my career after years of university, I'm recently engaged and saving up for a house with my fiancé so my life was going quite well. I have been dealing with everything that's been thrown at me so far with a smile and cheerful attitude, but over the last 3 months or so I've started having severe dizzy spells that are now affecting my day to day life worse than anything I've ever had previously (I say dizzy but it's more of a constant unbalanced feeling that sometimes progresses to dizzy and faint spells).
My managers very kindly allowed me to work from home the odd day when it's really bad so I don't have to drive and for the ridiculous amount of hospital appointments I have, but it's getting to the point now where it's bad the majority of the time and dread going back into work which causes anxiety and fatigue.
I'm not sure where to go from here in regards to work etc... I'm concerned that at some point in the near future the arrangement I have to work from home for the odd day is not going to cut it and I don't want to make a fuss or take my manager for granted.
I've been in my current job over a year and awaiting to receive my permanent contract, but because I don't have an actual piece of paper saying permanent on it yet I feel as though I can't say anything to HR or go off sick etc for risk of loosing my job or feeling as though I'm 'taking the mick'.
Has anybody else been in similar situation and how did you deal with it in regards to work?
Also has anyone else had this unbalanced/dizziness with any of the above auto immune diseases? I've been taking Betahistine for it and have been given some exercises to do but to no avail unfortunately.