finger pad sensation

[Tiggywoos]

has anyone experienced an odd sensation in their finger pads ? Feels bit like I’ve burnt them on oven . I do have raynauds but this feels different . Tips of fingers do have a purple tinge to them but only tips not rest of fingers thanks for reading as always you amazing people 🐈❤️

[Linda1950]

Hi I too have Raynaud's as well as ET+Jak 2. I had Raynaud's develop in the tips of two fingers after shopping in Tesco's this week as it was so cold in there😄. My fingers are very sensitive to hot and cold, not exactly as you describe but I believe there is a connection, not sure if it's caused by ET or Raynaud's though.

[Tiggywoos in reply to Linda1950]

Thanks Linda Sainsburies was 🥶 yesterday too ! X

[Tiggywoos in reply to Linda1950]

ET and raynauds strongly linked

[lindyanne]

Hi Tiggiwoos yes I have the same. My diagnosis (2005) is diffuse systemic sclerosis with severe raynauds and I’ve had really bad ulcers on first and second fingers right hand which are still not healing after ten months! Can totally identify with’burnt’ feeling on finger pads I can only assume it’s due to damaged tissue. I have acro osteolysis on several fingers with bone and soft tissue reduction due to lack of blood supply which causes tenderness and pain too. Not sure what ET is I’d be interested to hear?Good luck I hope it improves.

Lindy

[Tiggywoos in reply to lindyanne]

Sorry ET is my slang for Erythromelalgia as I can’t ever spell it ! Thank you so much for taking time to reply . I need a referral really to a rheumatologist as where I live it’s another 12 months for a follow up ! You take care of yourself

[lindyanne in reply to Tiggywoos]

Thanks! My son (he’s 30) has erythromelalgia and I think I have combined ET 😀 and raynauds Take care too we need to look ourselves

Keep smiling!

[Jacko37]

I have severe Raynauds and get this all the time. Think it's causes by tissue and nerve damage from all the ulcers and sores. Probably EM is involved as others have said.