Cold noses: I don't feel the cold... - Scleroderma & Ray...

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Cold noses

Dyemetza profile image
5 Replies

I don't feel the cold, though I always seem to have a cold nose. Does anyone else have this problem?

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Dyemetza profile image
Dyemetza
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5 Replies
Mylreaclairelee profile image
Mylreaclairelee

As I understand it, this can be Raynauds. Fingers, toes, nipples and nose can be involved. My nose is always cold too especially when I have a flare/episode which seems to be often these days.

MEW53 profile image
MEW53

Dyemetza,

I have the same problem, always have a cold nose, I don't seem to have any feeling in my nose, so difficult when trying to blow my nose. As I have cold hands too think all related to raynauds which is related to my scleroderma (systemic sclerosis). In the winter I wear a scarf wrapped around my mouth and nose which helps keep the nose warm and air warmer entering the lungs. The things we have to do to get by!

frillyhilly profile image
frillyhilly

Yes - it was one of the things the specialist used to diagnose that I had Raynauds. I went to him with cold legs (in middle of summer), he asked about my feet and hands and then said "excuse me " and touched my nose (which was cold, but I was not aware of it). He said I had Raynaulds and then did the blood tests to see if there was anything else going on. Thankfully there wasn't - so I have Primary Raynaulds.

This is going to sound weird but an advantage I get from my "cold nose" is that in spring/autumn it tells me if the air in the house is getting cold - before the rest of me notices - so it's very useful for avoiding a Raynauds attacks! The only way I can describe it is that I can "smell" the cold.

I'm sorry I don't know a specific way of getting rid of it. If it's a new thing for you, or it's got a lot worse, it maybe worth speaking to your GP/specialist.

AngelaRowe profile image
AngelaRowe

I do in winter also cold ears, hands and feet.

In summer I have cold hands and feet.

preston9 profile image
preston9

Hi, i am new here and have not been disgnosed with anything officially but I have noticed that my hands and feet turn purple/red and sometimes white on even just a cool summer night, or just a cool breezy day. My feet in particular feel really cold and wet even towards the upper feet and toes, even with socks on in the house. I have also noticed i have a permanent white patch on the tip of my nose and that also was freezing cold in the late summer ( we had some cool evenings in the uk last summer and I was getting it even then).

I have suffered eith eczema and dry skin and scalp plus numerous allergies all of my life and 2 years ago was diagnosed with corneal disease (keratoconus). My consultant at the eye clinic said i need to be refferred to an immunologist ( my skin was teally bad on my facd that day and body) but my GP didn't get the request on the letter 😡

I know I have gone off subject a little in order to give you an idea of my other health issues. I really do suspect I have Reynauds but not sure if it would show up in blood tests GP does or should I push for the refferal?

I have replied here because the cold nose sort if brpught me out of denial that I could possibly have Reynauds.

Thank you for any help/ thoughts

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