Appointment in October was cancelled yet again. GP contacted rheumatologist and I was seen at last this week. Definite dignosis of systemic scleroderma and secondary raynaulds. Gastric and bowel problems have increased and muscel weakness in thighs increased too.now waiting for CT scan of lungs as more breathless. Going into hospital in 2 weeks time for 5 consecutive days for Iloprost infusions. Does this help the raynauds? I am increasingly frustrated that few people understand what is wrong with me and say things like "you look ok and my hands and feet get cold!" I try to stay positive and keep busy with sewing and other crafts, its too cold for gardening! Not looking forward to winter, have bought sheepskin boots and battery heated gloves.
Last edited by bealepup
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