Polymyositis, scleroderma and Raynaud's

[p_syarova]

I am curious to find out if anyone in the UK have managed to attain a Disability Living Allowance? I have Polymyositis, scleroderma and Raynaud's. If you have applied - were you successful? Or were you refused? Thanks.

[Irene55]

I have these 3 illnesses.My doctor told me that with the Scleroderma/Polymyositis overlap I had a milder form of each. You won't qualify for any kind of allowance except for ESA while you are off work and after about a year you will be expected to return to work. I was. I spent the year off work walking every day, I didn't want to be a cripple so I walked myself fit. I want to be able to travel and not be looked after by someone else. However nice it would be to stay home and get money instead of going to work I preferred not to.

Unless you are really struggling to walk, and I was at the beginning, they won't give you anything. The days of easy money are past. I think a lot of the people who get DLA now must be good actors.

I hope your health improves, if you have a good rheumatologist it will make a big difference.

[Helen58]

Hi, I am seriously pissed off, have today received a letter from PIP and they have refused me an allowance but suggested that I might be entitled to other benefits though it is up to me to find out. Am I supposed to go from a chemo session to work and fall asleep. I have been unable to work for a year and have not received a penny in sick pay. It has been suggested that I contact Macmillan for info. I have found people online who charge to help with getting benefits but am yet to find the charities that help for free. Sorry to rant but today is not a good day and the mail was the final straw. Good luck with your claim.

Helen

[perelik1 in reply to Helen58]

HI Helen,

I'm not sure if this link will help, Benefits and Work [[e-mail]] they have lots of information on how to deal with PIP.

[Helen58 in reply to perelik1]

Thank you for the info, I will research further

[Peanutbutter6]

Hi Helen . Jacqui here , I got on touch with Macmillan , all they told me was if you have less than £6,000 in the bank you are exempt from payment of council tax. Speak soon, x

[Helen58 in reply to Peanutbutter6]

Thanks Jacqui, I will be in touch soon. XX