I wanted to see some pictures of other people’s raynauds in their hands and feet if possible? I have an appointment with my doctor next week to discuss with them but have attached pictures to see if anyone else’s looks similar.
I have a family history of raynauds and lupus
I have Raynaud’s, Systemic Sclerosis and Sjogren’s plus Hashimoto’s hypothyroidism. Also I’m hypermobile. My Raynaud’s started suddenly when I was 48, a year after onset of inflammatory arthritis. Two of my fingers turned completely white during a Tai Chi session and I lost all sensation in them. From then on they looked more like yours with my toes turning white and completely numb, then excruciating when the blood flow returns. They have only turned a bit blue at the tips like in the typical online photos a couple of times. My skin is extremely fair so maybe it shows on me somewhat differently when my digits turn white. I’m on powerful treatments so am guessing these prevent ulceration and other classic symptoms of Systemic Sclerosis. I attach a typical photo of my hand with Raynauds from this morning.
and here is one of my foot last week
rhubarb and custard like mine oldted 😘😉xxx
Yes R&C indeed! I get EM more painfully in hands than feet now but Raynaud’s equally bad in both xx
Ps here’s a third pic from me
That must be blooming awful in hands . Same feeling in hands as feet like being ironed ? xx
ps can’t easily take photos of hands with EM as too painful - good thing as it usually affects my hands and face when I’m seeing my neurologist due to the warmth of hospital, long waits and fluorescent lighting so it was v easy for her to diagnose! According to geneticist it’s mostly an hEDS associated condition?
Just for you dear Tiggy at 4.30am - Erythromelagia hands started bit earlier as went to bed at 10pm after a night out at curry house for my eldest son’s birthday. Stoma says not to be repeated even though I only ate a kid’s helping of the easiest bits eg steamed rice and naan bread (gluten 🤨). See how hand furl hard to photo but ironed they be! Pain still not as bad as my Raynaud’s when the blood comes back in or when get occasional ulcers though xx
Omg oldted can’t believe that as curry makes the feet burn like crazy even just one spoonful ! They look so painful 😣. I get the curling thing too. Big hug. Thank you for being so active on here .. you’ve definitely encouraged people to open up and post more 😘😘😘xxx
Ps me included . You’ve made me feel less alone and I’m so grateful for that
Aww shucks I’m very touched by what you’ve said 😊☺️🤗
Curry is a no no for gastroparesis people but it doesn’t flare my EM - that’s just about warmth and sweat and friction for me I think. My hands are like this every early morning always regardless of weather . It’s just small fibre neuropathy which I’ve had for years now and Erythromelalgia is said to be the way it manifests cutaneously. I think it’s my Sjogren’s and HSD/ EDS that triggered it but a I’ve stopped sweating now and lost so much weight the Raynauds has become the more dominant prominent extreme xx
good luck for next week😊 here’s a pic of my feet . I get raynauds and Erythromelagia in feet but just raynauds in hands . Right hand more than left ! Take care x
It definitely looks like Raynaud's. In my case and in many others, my fingertips were white. I consulted Wikipedia and read the words Raynaud's and Scleroderma. I went to my GP the next day. She ordered blood tests for ANA levels which turned out positive. Stay in touch with the group.
This is what mine are like before and after iloprost treatment.
I’ve had Raynauds since I was 17 and a diagnosis of limited SSc with high scl70 antibodies for the last 2 years. My hands started off like yours and got worse over the years.
This photo was before I started having iloprost infusions every 6 months, mycophenolate and sildenafil in the winter months. They are markedly better now, just a bit fat! It is rare that they go this blue now but it does still happen on particularly wet, cold or stressful days.
I hope you get some good advice and help to alleviate the symptoms you have 
I’m 28 with a recent diagnosis of Limited systemic sclerosis, but have been suffering with raynauds for around 2 years. It definitely got worse this winter but my hands never go blue like on the pictures you see on google. It has weirdly started impacting my middle finger on my left hand all the way down to where my ring is now. All other fingers just to my knuckle.
Blimey holly that’s impressive ! All our pics are better than the on line ones . Ironically mi pinkie on right hand goes completely white x
Interesting mine are white from the finger tips down and then turn blue and purple if I don't warm them quick question enough. The best way I can describe it is like instant frostbite it's extremely painful. The above happens when I'm at the exposed to any slight decrease in temperature.. what I find to be very strange when I have the episodes that are brought on by extreme fear, panic, or worry. And these instances my fingers lock straight and my fingertips come together as as if I'm making crab pinchers, then my wrist bend down and I'm just stuck like that and I'll feel it all the way up to my elbows or sometimes even my shoulders. It's actually quite terrifying. I've been told before that it's a panic attack but I'm not even having any extreme heart palpitations or hyperventilating not even really erasing of my heart it's more of an extreme adrenaline rush and fear. I've always wondered if other people with Raynauds have these symptoms brought on more by the stress side as opposed to temperature.
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