raynauds and scleroderma

[diane09]

its so confusing what is it, I am so fed up

[Franji]

Hello Diane.

So sorry to hear that it is making you fed up pet.

I too was very confused when I became aware

that I had it in 1997 aged 42.

We are told it is unique to each person.

Raynaud's symptoms are displayed in very cold extreme ties

affecting feeling and skin colour of fingers, toes and nose.

Scleroderma.....more complex affecting the INSIDE of the body more.

Raynaud's Scleroderma Association at Alsager are a reliable

source of up to date information on this condition.

Also....on FACEBOOK there is a group called Scleroderma Family

where sufferers share advice.

I hope this brief info will help you and guide you a little

in your research to what it actually is.

Franni Butcher

[diane09 in reply to Franji]

thanks I will get cheers

[buddynbear]

When my Raynauds flares up, i get multiple flare ups throughout the day and evening. As many as 15-20 a day. The thing is, its the meaty part of my hand, the inside of the palm that always swells up, turns bright red, sometimes with white splotches. Anyway, i never hear of anyone who's palms flare up like mine. Anyone having issues with their palms ?

[Lher123 in reply to buddynbear]

Yes! I have that many flare up a day also!! it is so frustrating and i love being outside!

[buddynbear in reply to Lher123]

I'm sorry to hear that you have so many flare ups too. I'm happy that you replied because i didn't know if others had that many too. I've read a lot about it over the years but haven't seen or read much about having as many flare ups as i/ we do. I also have not heard of any one getting it on their palms the way i do. My fingers do turn purple and the veins in my hand get noticeably larger but my palms are what hurts the most. Like fire. How about you ? Do you get it in your feet ? I dont. Do you get it on your palms ?

[Lher123 in reply to buddynbear]

yes! I have it my feet too! my feet are worse than my hands! I have already gotten frostbite on my toes.

I love to be outdoors and wear hot packs in my shoes and mittens. most days this hepls but if it very cold out it doesn't. I dont get flare up on my palms however I can sometimes have the back of my hand turn completely white!

[Lher123 in reply to buddynbear]

I also worry that every time I have a flare up it is damaging the tissue!

[buddynbear]

I agreee.