still struggling with machine and mask

[Delilahmy]

had the cpap for almost a month now and seem to have 2 bad nights and one ok night. Have only felt the benefit for one day …. When I felt like I didn’t need a daily sleep. Still with the nose mask and still struggling with comfort…

I don’t want to moan and I am persevering but wonder if something is wrong …. Mask/ settings/machine …. Thanks for listening

[Cowbsky]

Hi,

_ I have been talking with you in your other post;

_ just to share: when I started CPAP I went blind (that is , without acessing my daily dataset with OSCAR app), using a nose mask. Got some results, yet very poor, cause of lots of mouth breathing. Consequence: lost 1 year with poor therapy, on wrong Machline (brick CPAP, rather than a Bilevel CPAP), wrong mask, wrong pressure psrameters;

_ long ago I moved to full face mask, everything much better, even though only some 3 months ago I realized I had to tight a lot more this mask!! Now, perfect on this issue;

_ then, keep on trying and learning;

_ by the way, are you a RLS well diagonsed sufferer,?

Good luck

[Delilahmy in reply to Cowbsky]

hi Cowbsky … thanks for your reply… I too have tried to access Oscar …. But had to loan computer from my sister as I am a Mac user and as card is to be used with windows…. So just waiting for my son to sort this for me…. I’m struggling with … mask… pressure and leaking… head straps uncomfortable .. gone from nose to full then back to nose. I have called the team for help and missed their callback today … so waiting for their next call. It’s a minefield but I’m hoping I get it sorted soon

I’m using Lowenstein prisma smart with humidifier and masks are resmed

[Cowbsky in reply to Delilahmy]

Hi,

I am attaching my last night overview for you to have a sense on what daily dataset you coulld acess with OSCAR (in a rather compressed scales, etc)

good luck

full night compressed overview and parameters from OSCAR

[Cowbsky in reply to Cowbsky]

hi, Myish

_ if you dont mind, I have not yet known whether or not you are also a RLS sufferer;

_ that because the two conditions very often, for reasons nobody knows, go hand in hand ;

_And in my case, even though both conditions are well controlled, there are some remaining night drawbacks (wake ups), which I still dont know where they come from, and how to battle them: RLS or residual respiratory minor chockings?

Good luck

[Delilahmy in reply to Cowbsky]

hi Cowbsky … not sure what RLS is … is it restless leg syndrome ? If so … I haven’t … this is so difficult to get to grips with … Hank’s got your support

[stratford_58]

Good morning Myish

I was prescribed an APAP machine with full mask over 18 months ago and have struggled with it due to very active Parasomnia and only getting about 5 hours or less sleep a night. So much so that over the past five or so months I have been experiencing sleep apnea symptoms during the day. These including random dozing off, cognitive decline and some thought disorder.

I had a second night in the sleep clinic at Guys Hospital London and was referred to respiratory team at Lane Ward in St Thomas’s Hospital London where I was admitted two days ago and trialed on a VPAP or BiPAP machine which I am going home with today (I hope). I have a number of other health conditions, one of which is COPD (I have never smoked) and so the BiPAP machine will be more in tune with the severe obstructive sleep apnea and COPD that I have been diagnosed with.

I am writing all this to say persevere. It will come together in the end. It just takes longer for some people.

I am very hopeful for the new machine.

Also, make sure you have good sleep hygiene. I am going to do my best to get seven hours sleep even if it means I have to go to bed at 9pm. My alarm starts at 4:30am. Eat well. Exercise. Get support from friends and family and on here as well.

Happy to keep chatting with you whenever.

Best wishes

Geoffrey