The Australian Sjögren's Syndrome Association

New here!!

I was diagnosed with Sjogrens Syndrome about 30 years ago, secondary to a diagnosis of Rheumatoid Arthritis some 7 years earlier. When my contacts became uncomfortable, no one could tell me whether this was from all the meds I was taking, or some how connected to the RA. I didnt get the diagnosis of Sjogrens until 1986, when we moved and my new doctor was doing research into SS. He took a biopsy of my salivary glands (in my mouth), and confirmed microscopically that there were definite changes to the glands that only occur because of Sjogrens.

By the way, to this day NO ONE has ever confirmed for me what I believe to be isnt only our mouths and noses that dry out. For us ladies, I believe that our sexual organs are also effected by Sjogrens Syndrome. I plan to buy stock in the company that sells KY Gel !!

Good to meet every one!! (I forgot...I live in Texas, USA)

1 Reply

I was told when I was diagnosed that Sjogrens was capable of attacking any secretory gland. I was warned about vaginal dryness and told that in a small proportion of patients the respiratory tract, digestive system, skin and organs such as the kidneys or pancreas could also be attacked. Fortunately only a very small proportion of patients have this really extensive attack but it has happened.

Don't panic, take it as it comes but don't be afraid to talk to your doctor about odd symptoms. Sometimes they can at least slow down the progression by using stronger drugs. These drugs also have potentially serious side effects so they only use them when they think the benefits outweigh the potential problems.

Good luck


You may also like...