Well, I've been managing very nicely for a number of weeks now. (At times, I even thought, oh, I'm ok now, over whatever attacked my well-being)!
Of course, just as I was beginning to feel ok'ish', so I am reminded, there is no cure for Sjogrens.
So, I'm back in bed, having returned from a GP appointment, armed with antibiotics, pain relief meds, and eye lotion.
Symptoms came on suddenly yesterday. I drove through lovely countryside, beautiful sights! Windows down on car, feeling good!
Then, I became overwhelmed with a potent smell. Beautiful, as the smell was, perfumed? Rapeseed? Who knows? But, I put that car window up pronto! Damage done!
Within an hour, or two, my throat, and nose, scalded. Reluctant to take antihistamine, (due to drying, side-effect, I took honey and lemon).
This morning, full blown throat pain, burning nasal cavity, sinus and head pain. Chest feeling tight. Trip to GP. (Learned last 2 episodes, get problem sorted, as took a month each time before similar symptoms, due to my trying to do without antibiotics).
There, due to a couple of previous appointments, whereby I had negative experiences with medics, who believe sjogrens symptoms are psychological. And, my growing knowledge, and confidence (through support on this site and specialist care medics), I was not only able to thank the GP (I had never met her before), for her great service. I felt confident to ask how much she knew about sjogrens.
When GP responded that she had knowledge from gynae perspective, (you all know, ladies!), I was very happy to provide her with a leaflet with a great summary of how sjogrens can/does affect, each body system, and impacts on patients overall well-being.
GP thanked me. Then told me that she trains GPs'. It will come in very useful.
Wow! Couldn't have given the leaflet to a better placed health practitioner!
If anyone wants leaflets, to help raise awareness of the reality of living with sjogrens. Google BSSA, (British Sjogrens Syndrome Association), they also have a helpline and, arrange face to face, support groups. BSSA also send members a quarterly magazine full of great information. It has been a great organization for me. I have made friends and we each know we can phone each other any time. Isolation and misunderstanding has been overcome since I joined up!
Together, we can, and will, improve our experience, with health service practitioners! In addition, we are helping them gain knowledge, they otherwise, do not have.