My health has been terrible for many years but I will try and be brief! I've had many tests and my definite diagnoses are Hashimotos, Ehlers Danlos Syndrome and PoTS. I've had negative anti body tests for Sjogrens several times, same with RF and ANA, however recently my ESR has been slightly raised - max 37 and my autonomic symptoms are so much worse they are considering autonomic failure and I have more tests to do for that.
Recently pain has been so much worse along with wildy fluctuating blood pressure. I have dry eyes which are worse some times than others, terrible dental decay and receeding gums (this can happen in Ehlers Danlos Syndrome also) . I haven't been able to work for the last 4 years and wondering even if previous tests have been OK if I should maybe persue seronegative Sjogrens? Thing is, most Rheummys seem to say if ANA and RF + antibodies negative then highly unlikely sjogrens. What to do?