Update On Burning Outhitting Syndrome PLEASE

[Debbweb01]

Hello and thanks for all your responses to BMS! I just want to tell all of you I suffered badly for 5 months! Doc after Doctors! Finally I went to ENT & She cured me! I want to give Y’all the name of My Dental Paste she gave me! It’s called~

TRIAMCINALONE ACTONIDE DENTAL PASTE USP, 0.1%. I just want to make sure everyone got the name! I was told I must take Vitamin B12 shots once a month or it will come back! That cud be only in my case tho! I had 6 stomach operations! The first 5 in 5 years! I don’t metabolize B22! I also take D2 pills by prescription once a week told by my Rheumatologist! I also have APS/ antiphospho lipid antibody Syndrome/ Hughes Syndrome! On HealthUnlocked they call it Sticky blood! I lost my left leg to it, but I don’t allow it to stop me! Also had some relief so I cud eat before I found cure with Lidocaine Liquid! Also my dentist gave me MAGIC SWIZZLE! ITS LIDOCAINE MIXED WITH MALOX! That one is very expensive as I’d the dental paste, but u need very little of it! So far I’m cured! I hope this helps anyone withBMS! If I can be of any help please let me know! Godspeed

[honeybug]

Sooo happy for you. 😊🌿🌸🦋

EJ xxx

[Tally]

You are so kind and caring.

Take care xxx

[Hidden]

Thanks so much for this information. Sorry I never replied to your other comments on my old post. I’ve been having some problems with my HU app and logging in.

I’m in Scotland, UK and don’t always have access to same products as those mentioned here but have been prescribed a cream which I’m waiting for.

In my case BMS only affects the lips and gums and different toothpastes etc doesn’t seem to change the pain - I’ve tried using a totally natural, organic one and it’s refreshing as I also have a very nasty sour taste always. But it doesn’t stop the BMS.

I don’t have B12 deficiency but my oral medicine consultant is getting me tested for zinc deficiency and swabbed for oral thrush - although she can see no sign and my mouth isn’t very dry. She thinks it’s all part of the neuropathy affecting me elsewhere and also thinks my parotids might be getting blocked and infected so I’m to have an ultrasound of them soon. The lips have been much worse when I use a chemotherapy cream to burn away the cancerous cells on lower lip so this has been troubling me greatly for the past 4 months as I have to use it for 2 weeks and it causes BMS type pain to magnify x 100!

[Debbweb01 in reply to Hidden]

Oh Boy it’s tough to go thru! Couldn’t eat a lot! I lost weight which was good, but trying to keep the weight I have! Never thought I’d say that! Look old now that I lost weight! All skin hangs! Lol... oh well! I pray all goes well and u get cure! Godspeed

[DBENNETT34]

I have the paste but it does nothing. I put in the back palate to dry it out and a fake tooth in front where the mucus or saliva comes out constantly, worst when I brush my teeth. what is bms. they have not come up with even a diagnosis for me in 6 yrs. I am on a stomach peg and take water and pills and some formula. I try to eat 2 meals a day but I seem to get un unsual amt of saliva that wont go down. it is miserable.

[Debbweb01]

I’m sorry parse didn’t work for you! How about Vitamin B12 and Hi dosage of Vitamin D once a week! No matter what ur doc say we are low in Vitamin B 12! Get the shots or take supplements! I’m living proof of Mary’s Legacy!!!