I’m after some advice I have Sjögren’s Syndrome, Lupus & Arthritis.
I’ve had sores , cracks etc around mouth for a couple of months now, extremely sore. Improves then gets horrific and bleeding by next day. Just up and down. Dr has given me steriods , steriod mixed with canasten Incase the sores have turned fungal. I then get rock hard crust, I can’t move my mouth ( literally) then it peels off naturally then crusts again. I’ve also had sores on my body which dermatology have said is UV allergy, which makes no sense as it’s in places that are uncovered but also places that are not uncovered, ever.
It’s more like a psoriasis type growth of skin , same on my body all small circles of scaly skin about size of dot up to a small coin sizes , all over. If skin gets damaged ( like scratched) it then turns to crust.
I know Sjögren’s can cause a lot of skin issues with some people.
If anyone has any ideas or has had this and can give advise that I could speak to my Dr about before I get to see my consultant, it would be great
. Will upload a picture !
Oh and etc info if it helps . I’m on monthly biological Abadacept infusions, my white cell count is 0.9 at the moment. So it’s low lately.
I take hydroxychloraquine 400mg daily
Plus loads of other tablets, we all are used to taking with these conditions. No new drugs though.
( could it be my immune system) I’ve been feeling rough for the couple of months. Maybe my lips and skin just can’t heal ??