My 7year old daughter has had keratoconjunctivitis sicca for over 18 months with permanent scarring on one eye.
She has joint aches mostly in her back, knees and now her shoulder. She also has stomach upset and pain regularly.
It has just been confirmed by her dentist that she has a severely dry mouth. We’ve been given a list of instructions and products to help her with this and they have recorded on her file to have more regular checkups so they can watch for damage. The dentist said she thinks she has Sjogren’s.
BUT.. her blood test came back negative and the paediatrician has said she doesn’t have it because of that.
What do we do now? Is it worth getting a second opinion or do we just treat the symptoms and not worry about a diagnosis?