I have been taking Hydroxy Urea (1000mg/day) from last 14 years (2001) and had no transfusions since then. I am 27 years old. The crises have decreased to 3/4 per year which last 3 to 4 days. I usually use Panadol & Nuberol as pain killer and drink plenty of water during pain. I am usually involved in strenuous physical and mental activities due to nature of my job.
I have observed that if I do not exercise or do physical activities for some time, I get sick.
Any body care to share their experience?