In Remission after 1st Recurrence

[9667]

In Remission after first recurrence, already been on Lynparza, NOW WHAT?

What are you taking as your Maintenace drug? Side effects?

[SDlady]

I'm not taking anything. I had OC in 2017 and then again in 2020. Took Lynparza for about 1.5 years and then I had to quit as I couldn't tolerate it anymore. I just pray every day and enjoy life.

[9667 in reply to SDlady]

WOW! Great and you are not taking any maintenance drug?

[SDlady in reply to 9667]

No , I’m not taking any maintenance drugs. Take care.

[Moirac in reply to SDlady]

I have been finished with Lynparza for 6 months. Also on no meds. Just enjoying life.

[JustKBO]

Rucaparib.

[9667 in reply to JustKBO]

I don't know how to reply privately to Just KBO...please help

[Heidels]

Zejula(Naraparib) Been taking for 4 years. Never a recurrence . I wondered how then would they know it was this drug that kept me NED, since they have nothing to base it on.

[Pianoplayer731021 in reply to Heidels]

Hi Heidelberg, I was just reading that you were on Niraparib for four years. I have been NED on Niraparib for three years. I was on a 100 mgs. dose and they took me off this after taking for three years. I had some side effects once in awhile which I took a break off sometimes. I had some UTIs this past year and also my hemoglobin was low a few times which I had a transfusion for. I know this drug can affect our blood in different ways and I was just wondering if you were doing well taking this for four years. I have been ned since I started my chemos, surgery and niraparib. It is always a thought when if I would have been ned without Niraparib, but I decided to try it. Anyways, I hope I can continue being cancer free for a long time, but we never know what this disease wants to return again. Hope you can stay ned . I do feel better on no drugs right now, so fingers crossed that things will go alright. Take care, Donna xx 🥰

[Pianoplayer731021 in reply to Heidels]

I meant Heidels, not Heidelberg. Whoops !

[WildflowerTheWarrior]

I’m on Avastin.

[9667 in reply to WildflowerTheWarrior]

were you ever on Lynparza? if so, for how long?

[WildflowerTheWarrior in reply to 9667]

No i was never on Lynparza.

[9667]

2.8 years