Large Ovarian Tumor

[REMC]

Hi, I’m new and found this group by accident. I was just told that I have a large 19cm x 13cm x 19cm tumor on my left ovary after an ultrasound. Needless to say, I’m so scared that it may be OC. I go for an MRI on Monday with contrast and without. Has anyone heard of a tumor this large? And are they usually there because of OV? Thanks for any help and prayers to anyone going through this.

[GwenHP]

Hi REMC. That was about the size of one of the tumors they found when I was initially diagnosed. Do you know if they have ordered a CA125 blood test for you?

One of the hardest things is all the waiting.... waiting for doctor’s appointments, waiting for test results, waiting to find out what our options are. Best wishes and let us know how your scan goes on Monday.

[REMC in reply to GwenHP]

Hi Gwen and thanks for the good wishes. They mentioned that I will need the CA125 but have not yet ordered it. I had blood work done the day of the ultrasound and I think they were checking to see if it could be run with that first. Yes, the waiting is awful. I just want this mass out of me fast. I just went through a triple heart bypass in Nov. and now this worry...idk how much I can take 😢

[GwenHP in reply to REMC]

Your post reminded me of something a friend once told me. She said she believed God wouldn’t give her any more than she could bare. She just didn’t realize her shoulders were so big.

While we feel like sometimes we just can’t take anything more, it impresses me how people can dig a little deeper into themselves and make it through what ever they have to do.

Let us know what you find out next week. If it turns out to be ovarian cancer, know that you have teal sisters who will be by your side.

[REMC in reply to GwenHP]

I know what you mean Gwen and thanks for the reminder that God will give me the strength I need as I need it. It’s scary going from never needing anything medically for 60 plus years and then all of a sudden boom 💥.

What does the TEAL sisters mean exactly? I’m already so glad I found this group! Thanks again!

[Nancy222]

I'm glad you've found this support group. The people here are truly amazing and most helpful, so poke around and read some of the posts.

Best wishes and here's a hug.

XXOO

[REMC]

Thanks for the warm welcome, Nancy! I was reading on here last night and saw how helpful this group was to each other so decided to join ahead of the diagnosis that I’m expecting. Praying it won’t be, but getting prepared in case.

Hugs back to you! Enjoy your day!

[Wanthealth]

🙏🏻Prayers🙏🏻

[REMC in reply to Wanthealth]

Thank you!!

[Wanthealth in reply to REMC]

(( hugs ))

[Jazzagirl]

They truly don't know what it could be until they remove it. I just went through this myself, with almost the same size tumor. Mine was a type of ovarian cancer called granulosa cell tumor, but they were able to remove it all and it's not usually aggressive. Please keep us updated on your progress. You will make it through, I swear!

[REMC]

Thx so much Jazz! My MRI showed that the tumor is part hard and part gel (I think is how she described it). She said the lymph nodes look ok. My CA125 is in the 50s so a bit elevated. I’m so hopeful that they can remove any cancer with the hysterectomy. I’m waiting for a cardiologist apt so I can get some tests out of the way that the doctor said they will want before operating since I just had a triple bypass six months ago. (Going through this has already been worse than preparing for open heart ❤️.) You ladies are so tough and such an inspiration to me already. And I guess I need to see a gyno before the surgery...can anyone advise me on that?

Jazz I’m so very happy that yours was able to be removed!! 🎉🍾🎉

[Wanthealth in reply to REMC]

Hugs and prayers ...🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

[Jazzagirl in reply to REMC]

Thank you! Do you have any updates?

[REMC in reply to Jazzagirl]

All my tests were completed and ultrasound, MRIs and CT Scan are indicative of cancer. I was scheduled for a total hysterectomy at a hospital out of network on the 15th and the hospital and insurance company totally screwed up and would not work together so the surgery was canceled the evening before. 😢

I am now waiting to be seen at John Hopkins in MD. on the 27th. This has all set my surgery and diagnosis back by at least a month and I’m very upset. It’s bad enough to worry about cancer, but for them to put me in this position of starting over and letting this thing grow was just so wrong!

I will update again after surgery. My love and prayers go out to all of you! Stay strong!!

[REMC in reply to Jazzagirl]

My surgery was completed on July 3 and took five hours, much longer than the two to three hours anticipated. The mass was the size of a basketball and the surgeon took a picture. It really did look like a basketball lol. My stomach was as huge as anime month pregnancy!

It is clear cell carcinoma stage IIIB.can someone explain the B to me? The spread was found as two .4 cm or smaller on the Omentum. Ovaries tested were not affected.chemo is to be started within three weeks of surgery so around the the 24 th or before. They plan on using Carboplatin and Paclitaxel every three weeks for three six week cycles.

If anyone is familiar with any of this and has any advice please let me know. I have my fighting gloves on but would love to have a better idea of what I’m fighting and how hard it’s going to be.

Love and Prayers to all my sisters!! God Bless us and keep us strong!

[caf132]

Hello- I had a 22 cm tumor I discovered myself. I had surgery and 18 chemotherapies. I am 19 months post chemo. It was not as bad as I thought it would be. They have come a long way in treatment. I also could not wait to get that thing out of me. I had a full cut hysterectomy with appendix,omentum, and Fallopian tubes taken.

Good luck to you and keep us posted.

Xx CArol

[REMC in reply to caf132]

Thanks Carol! I’m so glad you’re doing well and I thank you for the info

[Wanthealth in reply to caf132]

That’s great news and so hopeful! I’m having omentum removal July 2nd. My 3rd chemo is on May 29th trying to stay positive.. reading all your stories helps thx

[REMC in reply to caf132]

Hi caf132,

I’m wondering if yours was perhaps clear cell like mine? It seems I’m in for 18 total chemos like you had so thought maybe...

[caf132 in reply to REMC]

carcinosarcoma was on the path report

[REMC in reply to caf132]

Thanks, idk much about either, but I guess they are different.

[REMC]

Also my CT125 was 82.2

[REMC]

Sorry for the typos can not see as I type on here. Lymph nodes not affected at least not the ones they tested. And stomach as big as a nine month pregnancy