Now I have to be on a statin! Never had a problem before. Everything tastes terrible and I can barely eat. On the middle dose - but want to beg for the lowest dose. Not much energy to play with the grandkids.
Took the wonderful advice from this forum - of putting the pill in an empty capsule - so no sore mouth.
Check out the alternatives to statins online to find a substitute which works better for you.
Anorexia and the bitter taste of food is a known side effect of Afinitor. I gave in to the anorexia but I had weight to lose so it was okay but I just found anything with sugar was a problem. And so many things including milk do have natural sugars in them. My doctor suggested Sustagen because it’s very high in everything including calories but one drink a day was enough to stabilise my weight. I only lasted on Afinitor for ten months because of liver inflammation but I stayed on Exemestane. I didn’t have mouth ulcers either but I didn’t do anything to avoid them. Only 60% get mouth ulcers but it’s the biggest side effect.
Don’t want to frighten you, please be aware that if you are taking a stain with Ibrance you will get Rhabdomylosis. I took a while for me to get it full blown , had mild episodes in which I would have to get a transfusion and or infusion and go off all beds. It was assumed worsened anemia. Until one weekend I went from having trouble walking to full blown Rhabdomylosis, please notify Dr. of this side effect , I was taken by ambulance, it causes muscle breakdown then organ failures. Please read up on it. Take care
Whoa! Thank you for this info! I will do my homework. I never needed a statin before switching to Everolimus from Ibrance.
Honestly , I think this dose (7,5) is overkill. My ctDNA is positive 2. 08.
The crazy thing was I didn’t even need a statin it was just something my former gp gave me because I was on thyroid medication. I had many episodes over the years of rhabdo symptons that were misdiagnosed. Now before I take any new medications I thoroughly research, we have to be proactive ourselves.
Take care
Hi Merma. I've been on Everolimus & Exemestane as my second line treatment since May 2023 and have been blessed to have really no side effects. I did however after a year on the treatment develop elevated cholesterol. My oncologist and I felt it was prudent to begin with a low dose statin and I have remained on it since. I also was prepared when I started Everolimus and put my dose(7.5mg) in a gelatin capsule so avoided the mouth sores that can be troublesome for some. I am surprised that you have developed high cholesterol after such a short time on the drug but I guess everyone is very different. I hope you are able to move forward. I'm not sure dropping down from 7.5 mg to 5 mg will make a difference in the hypercholesterolemia that you have developed. A change of treatment might be necessary. Good luck in whatever you decide and again I am truly sorry for the issues you are having. Take care.
Exemestane and Everolimus
Ibrance side effects
Xgeva Side Effects
