Follow-up: Last week I posted about... - SHARE Metastatic ...

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Follow-up

Frenchgirl69 profile image
17 Replies

Last week I posted about progression of Mets in my liver while on Ibrance and letrezole. On seeing my oncologist on Monday, he kept me on Ibrance and put me on falsodex. I’m hoping this stops the progression. I appreciate everyone’s kind comments and advice. I have had my first injection and no adverse effects. He said he would delay chemo as long as possible. My liver is the only place I have Mets.

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Frenchgirl69
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17 Replies
Red1246 profile image
Red1246

Sorry you’ve had metastases and hoping you do well on your new line of treatment. 🙏🏻❤️

Hazelgreen profile image
Hazelgreen

Do keep in mind that the liver is a large organ. You can lose the cancerous part of it with surgery, and manage fine.

Beryl71 profile image
Beryl71

I moved to that combo about fourteen months ago and have been fine. Just have to deal with a sore bruised bum for a few days! My markers have gone down and the node they were monitoring has shrunk considerably. Good luck! X

Totheriver profile image
Totheriver

Hope things go well for you💕

yevgeniakoretskaya profile image
yevgeniakoretskaya in reply toTotheriver

Thank you. 💓

love2golfwell profile image
love2golfwell

Hope you have great success with the new protocol and can stay on it a long time. Sending hugs and prayers.

yevgeniakoretskaya profile image
yevgeniakoretskaya in reply tolove2golfwell

Thanks.

yevgeniakoretskaya profile image
yevgeniakoretskaya in reply tolove2golfwell

Thank you for your support.

cpidacks profile image
cpidacks

Hope everything goes well. I have been on Faslodex only for 5 years. I have a liver met and have had no progression on the Faslodex. Labs and tumor markers are in the normal range. Keep us posted.

My experience with fulvestran and ibrance was not good. The lesions in my liver continued to grow and one reached 3 cm. After that, the doctor sent me for ablation and they removed this lesion. A month later, I had four new ones. The doctor changed the treatment, which lasted 9 months. But I read that many people are treated with fulvestran and ibrance for many years. This means that we are all different and maybe this will suit you for many years. I wish you luck.

Mamacass67 profile image
Mamacass67 in reply toyevgeniakoretskaya

Did you only have it in your liver when you had ablation or was it elsewhere too?

Frenchgirl69 profile image
Frenchgirl69 in reply toMamacass67

I have multiple liver Mets. It is the only site in my body. I have never been offered abalation. It was never in other sites in my body.

yevgeniakoretskaya profile image
yevgeniakoretskaya in reply toFrenchgirl69

I have Mets in liver.

yevgeniakoretskaya profile image
yevgeniakoretskaya in reply toMamacass67

Only liver.

Oberammergaux2 profile image
Oberammergaux2

all best wishes for your new treatment plan! Thank you for keeping us updated 💕

Merma profile image
Merma

Best wishes to you on this regimen.

POT2018ery profile image
POT2018ery

The start of my cancer journey began with a diagnosis of Stage I in 2008. It was discovered on a screening mammogram. I had a lumpectomy followed by radiation, and 4 years of arimidex. I had to stop the drug due to extreme foot pain which made walking torture. In only a short time after stopping the drug I was pain free and told the likely hood of recurrence was very small.

Ten years passed when a screening mammogram identified a recurrence which appeared in the lymph nodes in my left armpit. After more tests the Mets were found. My ribs and spine had Mets and lymph nodes in my shoulder and neck showed increased metabolic activity. There was no surgical solution to my problems. My cancer was identified as stage 4.

I was put on faslodex, ibrance and Xgeva for bone support.

I had a scan at 3 months, my axillary lymph nodes were markedly reduced and all the affected lymph nodes in my shoulder and neck resolved themselves. The other mets in my ribs and spine were found to be stable. It has now been 6 years since the start of my MBC trip. I’m still being treated with faslodex and ibrance. I get scanned twice a year

I think of myself as a 16 year cancer survivor. I am not reticent about telling my story and I’ve been told that it gives others hope. I don’t want to minimize how difficult a journey it has been. It was frightening and scary at times. I did get my wish to see my oldest grandchild graduate from high school and I had a 76th birthday. Life is good

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