RLY 2206 clinical trial

[mplevine]

Looking for participants of the trial. I start it on the 27th. Will take in combo with fulvestrant. Want to know side effects and how to address them.

[Adele_Julia]

This is a Pik3ca trial ? Fantastic !! Were you ever on Piqray or Truqap ?

[mplevine in reply to Adele_Julia]

I avoided them, I was on another clinical trial for 34 months, had some problems switching to this new clinical trial

[Adele_Julia in reply to mplevine]

Oh wow ! What clinical trial were you on for 34 months ? Thrusts fantastic !!

[mplevine]

ARV 471 with Ibrance. Worked well, very few side effects but unfortunately for me the cancer presents in my chest skin area and I had several bumps that erupted and we cannot get them to heal so on to another trial for me.

[visitingnurse]

Hi good luck with your trial. I have been on fulvestrant for 3 years now, just had my 2 injections this morning. every 4 weeks. the side effects i have experienced, joint pain, nights sweats , cough and fatigue. I wish you the best ever! let us know how it goes.God Bless

[mplevine]

Thank you. I am hoping the do the injections in my hips which appears to be the preferred location now.

[MazzyUK]

Good luck with the trial. I am starting a trial with Inavolisib and Fulvestrant on same day. I have had Fulvestrant monthly for 2 years (with Ribociclib) and had no real side effects after the first couple of months when I had some discomfort in legs for a day or two. Some nurses seem to do the injections better than others! I usually walk to and from hospital (about 25 mins) and wonder if this helps. Maybe hot flushes...but I've had those for 10 years so don't think much about them these days!

[mplevine]

I have not had fulvestrant , avoided that on the clinical trial I was on that I just ended but I read that some clinics now give the shot in the hip area as there have been issues with doing it in the buttocks.