8 years in April

[Kcuocci]

I have been metastatic for 8 years. After my 3 1/2 years on ibrance, I also average 10 months to a year. I have been on Verzenio, piqray, Xeloda and now Enhertu. I try to balance being hopeful and realistic. I don't believe there will be a cure in my lifetime but feel encouraged that new medications are being produced! My son is 12 and I would love to take him to college. 😘

[Pbsoup]

thanks for sharing this. It’s good to hear stories of people who have been thriving for many years! Xx

[Nocillo]

Sounds like you’re doing pretty well! There are many things out there, so don’t lose hope of seeing him in college and beyond. Good luck to you!

[Red1246]

So happy to hear you are doing well on the various therapies. Gives me hope hearing from you and others who’ve been metastatic for longer than I (4 years). Sending positive thoughts your way and hoping you can take your son to college, see him graduate etc. All best wishes.

[Goga156]

❤️ where do you have metas?

[Kcuocci in reply to Goga156]

Liver and bones mostly and two small spots on my lung. I have 8 lesions on my liver and hope they shrink on Enhertu.

[Goga156 in reply to Kcuocci]

how long on the liver? can you write your trip with mbc?

[bikebabe]

I recall being told by my oncologist (uk) 3 yrs ago when mbc was confirmed (I only had a tiny gap between surgery/mbc) to think of it like yet another bothersome chronic disease to live with (I have several) and that if one drug doesn’t work they’ll just throw another at it. I’m possibly nearing that point of progression and am hoping that the pace of NICE drug approvals in uk will match my needs and similarly for you. And there’s always the trials ….so best wishes for successes in your own journey.

[Kiss_my_grits]

Your post really resonates with me. ’m also always balancing hopeful + realism. For me, there is shifting in the quality I feel them. But they are both always there. And my kids are 16 and 12 and seeing them both off to college would be everything. We can celebrate that milestone together 🩷🙏🏻

[jersey-jazz]

And so you will!

[MettavivorDS]

I’ve also had MBC for 8 years. My daughter is now 15. My husband died 1 1/2 years ago and I went on social security disability shortly after that. Thinking about sending my kid to college when my income is very low makes me anxious. I’m not working and wouldn’t be able to get a loan. I just try to have faith that the Universe will look out for my daughter and that she will be eligible for scholarships when she applies.

It’s been a test of my spiritual practice to stay in the present. It’s so easy to get caught up in memories from the past or fears about the future. Not everyone agrees, but I believe there are spiritual lessons to be learned from having chronic disease.

[JEE123]

Maybe I'm foolish but I am hoping for a cure. Seem like there is a chance with all of the advancements.

[Kcuocci in reply to JEE123]

Not foolish! Hopeful!

[Liessie2014]

hi , I don’t think you are foolish at all !, thee is research going on all of the time , I do believe the scientists are doing an amazing job with their research , I do believe eventually there will be a cure for cancer , I love your positivity , keep thinking that , It will happen one day ! ❤️