Kisqali and EKG: I was just told at my... - SHARE Metastatic ...

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Kisqali and EKG

jltorcz profile image
7 Replies

I was just told at my after Lab. and ECG appointments that I need to set up an appointment with a cardiologist because my oncologist wants to monitor more carefully my ECG's. I guess the numbers they are worrying about are QTCcB= 460.

I have no clue about what this means, but I guess not great.

I can still take the full dosage of Kisqali, but who knows what my next ECG will show.

Has anyone had this side effect?

It never stops....

And then I received in the mail a notice that my doctor had sent my biopsy to FoundationOne to have as much specific info as possible about my cancer. I have some mutations, which many of you have mentioned, some of which have medical treatments available for me down the line if and when Kisqali doesn't work.

And all I want is a mini vacation.😕

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jltorcz
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7 Replies
My_Love71 profile image
My_Love71

I had some issues with the first ekg I took and it turned out to be stress related, I had just been diagnosed and was starting treatment…. When googling the number you gave, it stated the normal range for women is up to 460. Could be stress related and balance itself out, my numbers did.

jltorcz profile image
jltorcz in reply to My_Love71

Hope so. It was rather stressful adding another thing to worry about.

MSWife profile image
MSWife

this is a common thing with kisqali - the qtc for dose reduction is > 480. It’s reasonable to be monitored to ensure it doesn’t worsen, I think the vast majority don’t have issues with this (less than 1% of patients)

SoulJourney profile image
SoulJourney

good morning! That is stressful but try not to panic - they sent me for a muga with Enhertu or maybe something else it has been a while. A change in numbers not necessarily bad triggered an echo cardiology trip and specialist. Turns out my heart is in excellent condition - probably the only thing I have going for me 🤣

Not point worrying until you actually have results. Best of luck!!

Tammie

Granny333 profile image
Granny333

I understand completely. I try and take one day at a time however hard it is and hope for a better day tomorrow. Take care

TammyCross profile image
TammyCross

My ekg was borderline for prolonged Qtc so I was put on 400 mg Kisqali. I did see a cardiologist, at my own initiative, because I wanted to be sure. I am having ekgs every 2 weeks for the first two months. They have bounced around a bit, but seem to be getting better, not worse.

They do a correction (that is the c on qt) that takes into account heart rate. It is a statistical correction, and there are different formulas. My onc and cardiologist used a different correction from the ekg report. Their correction always comes out lower. So even when the report said 484m they said it was 460. This made me nervous at first, but they are monitoring it and being conservative.

They ignore the fact that my brother died of sudden cardiac arrest, even though the instructions say that is a no-no. I have to trust them, hard as that is! Also, after Kisqali it is probably chemo for me, so I need Kisqali to work.

Figletf profile image
Figletf

Prayers for you to remain hopeful and hain strength ❤️

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