Experiences with

Kisqali

I’d be switching to Kisqali+ letrozole. Even thought it has plenty side effects, I couldn’t imagine taking abema giving that I’m in a wheelchair. Please share your experience with Kisqali. How long are you taking it. What was your side effects and when did they occur.

But does this mean I will need to change from Kisqali?

I am currently on Kisqali and Letrozole on my 12th cycle. I've been experiencing tender scalp/back of head sore and neck muscles warm to touch. Almost like a burning pain. Will be going for scans soon. Just want to know if anyone experienced this.? Can this be a side effect of my medication?

I'm starting third cycle of Letrozole 2.5mg and Kisqali now 400mg/day down from 600mg after first month due to low Neutrophils. My question is how concerned should I be that my Ca 27-29 went from 50.6 to 60.6 in one month?

I’m taking Kisqali (ribociclib) and Letrozole (hormonal therapy), and thankfully, the treatment is working well. However, for the past six months, I’ve been struggling with serious hair problems – it’s falling out a lot, and it’s weak and brittle.

After a year on Kisqali and letrazole, I will be strting Truqap and faslodex next week. My oncologist and I decided this was the best course of action as opposed to the trial with Astrazenica and the new Genomic drug.

I’ve been on Ibrance , Piqray, Enhertu and Kisqali . I don’t know why but Taxol sounds terrifying

I’ve been on Ibrance , Piqray, Enhertu and Kisqali . I don’t know why but Taxol sounds terrifying

I've had surgery to remove the involved lymph nodes, have been on monthly Fulvestrant injections and take Kisqali. I'm going to be starting 6 weeks of radiation by the end of the month and I am totally petrified of it - to the point that I'm not sure if I will be able to go through with it.

on a trip away from home and have a head cold and a little fever for me, 98.6. Should I call my doctor?

It is .93 and they don't want me to restart my kisqali yet. Tomorrow I will hear from the doctor's assistant. It is so frustrating not having a definite treatment plan. Have any of you done the reductions for Kisqali? Has it helped reduce your absolute neutrophils? Any input would be welcome.

2 weeks ago I had liver ablation to remove 3 tumors on my liver. 2 were responding to treatment (anastrozole and kisqali for HER2 neg) and 1 was not. Surgery went well. Biopsy showed that the growing tumor was triple negative. Seemingly the other 2 (breast and hip met) are still HER2 negative.

I have been on a trial drug ( OP 1250) and Kisqali for 2 months.. and unfortunately they didn’t work..my ANC is now at 0.6 ! So I need to wait before I start my new drug…Xeloda..hard to wait! My question is what is the best cream people have used for the FH syndrome ?….. just want to be prepared!

Hi I’m newly on Kisqali and Letrozole and I am wondering if anyone has feedback about whether it seems better to take these during the day or at night before bed.

Anyone feel really crappy into week 3 of Kisqali?

today is 4th day of my Kisqali cycle and my calves and ankles are doing the same thing as last month. Unless I keep my feet elevated my calves and ankles swell. It all subsides over night. This went away completely during the break. So far no one else has mentioned this side effect.

Once I get the Kisqali under control, then I will ask about travel. Regards, Janice P.S. No nausea from Kisqali yet.

As I have mentionned I am doing two more cycles of Kisqali as per oncologist's directions and then another PETSCAN. That first one had some variable results as I mentionned in my previous post. Does everyone with Pik3 wind up switching to Pikray and Trukap ?

After that, I went through Tamoxifen, Letrozole + Kisqali, Faslodex + Kisqali, have scan every 3 months. Every time, there are lesions shrinking and others growing.

The plan is to continue on Kisqali for two more cycles, once my neutrophils rise above.93, hopefully next week, and have another Petscan in May, 2 months, instead of 3.