Hi ladies
I posted recently about asking for 75mg instead of 100mg Ibrance
Saw my oncologist yesterday and my haemaglobin has improved and she refuses to decrease the dose so that’s that
My markers keep rising but she’s not going to change meds until I have another scan which is a good thing...I know what everyone says about markers not being reliable but I’m still worried about them...I would be more relaxed about the whole thing if it wasn’t for that...very reluctant to change meds
Barb xx
Hi Barb,
Thanks for the update. That's good news about your haemoglobin. Are you feeling better since your iron infusion? I know what you mean about not wanting to change medication. We get into a routine and change can be scary.
Take care,
Sophie ❤
Hi Sandra
I’m surprised about the trampoline ban...sometimes it’s better not to ask!!!
At least you can do yoga and pilates..I guess you can’t really fall off a yoga mat!!
My oncologist said I could ride my horse even with the fracture..I suspect she knows nothing about horses and their naughty ways
I think my scan is due about May/June same as yours..not had appointment yet
All the best
Barb xx
I never take my husband to consultations and am very selective about the information I impart 😁
That’s understandable I guess...I’m a bit of a risk taker...in fact the summer before I was diagnosed I had a bad riding accident in Norfolk..ended up in a dyke with my horse in top of me..I often wonder if that precipitated the spinal and rib fracture..will never know though but I was in pain for a long time afterwards...lucky I survived that
I’m much more careful now...don’t jump stuff apart from little logs and I wear an air vest which inflates if I part company with my horse
You enjoy your yoga and pilates..I go to a yoga class but don’t like pilates...strangely I get vertigo when I do those sideways movements which makes no sense but there it is..wierd
Barb xx
Yes having private sessions is good...I found doing the upward dog or any postures where I had to arch my back..a bit uncomfortable
There are ways round those
Good luck and enjoy
Barb xx
thanks for posting! i hope and pray everything turns out well for you. my onc appt. is the 18th and I'm apprehensive. I am glad the onc/pharmacist lady at Briova raved about ibrance, it made me more confident as I know we only hear the horror stories not all the good ones! <3 God bless!
Barb, I'm a long timer with mbc, 15 years last month, and my onc has not changed tx based on TM rise but waits until a scan shows progression. I have only bone mets. In the 15 years I have been living with this damn cancer, the CA 27-29 has only been in the "normal range" (under 30) for a few months, but I have gotten a long long time from each successive hormonal I've been on. Nearly five years from Femara, over 9 from Faslodex and now almost 1 1/2 years from Aromasin. When I was initially diagnosed, in 2004, quite a few women with mbc and an E + cancer that responded well to hormonal treatment, would get as much time as possible from each med and then after several has worked and then eventually failed, would then go on a low dose of Estrogen for awhile and then go thru the previously taken hormonal meds. That has been my plan. I have an appt with Dan Hayes at U of MI CCC in a couple of weeks for a second opinion and am going to ask him about that, among other things. I will post what I learn from him. He is well known among bc oncologists and bc patient advocates. After my months long anxiety after this diagnosis, I realized that I am in this for the long haul and that getting as much time as possible from each med works for me. I don't know that it is the right approach for everybody, but I think for those of us with slow lazy cancer cells rather than fast growing ones, it makes sense and can be a calmer approach.
Hi there
At least my oncologist does t seem to want to change treatment just based on markers...having a scan next month to see if there’s progression
I did have a pleural effusion which has completely gone so she calls me bone only mets now
I hope I’ll be like you and have many years
Just had a lovely ride out on my horse..I’m lucky to keep him within some ancient woodland where Charles 11 used to hunt..quite famous...the trees are bursting out and there were bluebells...smelt gorgeous
I’m out with some girls tonight for a meal and some gossip..being busy helps so much
All the best to you
Barb xx
Oh thanks Sandra
The girls I’m out with tonight have horses...so guess what we’ll be talking about!!..lol
Yes I feel much perkier..the iron infusion has worked as my haemaglobin is normal and I have some better painkillers that don’t make me feel wierd
I hope you’re feeling good...when’s your next scan?... mine have been 2 monthly lately..ugh
Barb xx
I buy Your Horse magazine as it has a lot about horse health etc..sometimes Horse and Hound
Barb XX
This makes sense to me!! I wouldn’t change under those circumstances either
Sorry you are going through this, Barb.
My oncologist lowered my dose to 75 this month. This is after a year of 125 then 100 which left me with a three week break every cycle. We are hoping that the lower dose will finally allow me to take the Ibrance as we are supposed to. I’m like you and was hoping for a lower dose to have less side effects. I will let you know if I see a difference.
Let’s hope so Sarcie
My markers keep going up so I’ll msybe have to come off it..not thrilled about that..scan soon to decide..such a worry
I’m even contemplating going for a consultation at the COC in London
All the best
Barb xx
I’m thinking of you and hoping things improve. My doctor doesn’t even mention markers so I don’t know what that is. I have ct scans and they have showed no progression. I hope yours shows the same.
Coming off Ibrance and fulvestrant. Not feeling great. 
End of IBrance …
Carpal tunnel syndrome with Ibrance and Letrozole(Femara)?
