verzenio and letrazole

[Sharonpat]

I have been on letrazole and verzenio 5 weeks now just started cycle 2 how long do you take this before a ct scan normally I had my last ct scan in march after completing chemo many thanks also if anyone has any questions about verzenio or letrazole happy to help

[Aprilfoolz1]

I have scans every 3 months in the US. I would think you would get scans in June. Sounds like you are doing well which is great !

[Sharonpat in reply to Aprilfoolz1]

yes I’m doing well on the medication just like to know it’s working as I’m on highest dose xx

[Aprilfoolz1 in reply to Sharonpat]

I understand how you feel. Hope you have scans next month that show the meds are working !

[bikebabe]

Records say I had CT/mri scans at 3 monthly intervals (uk) after starting Letrozole and palbociclib (equivalent) and denosumab and this has been unchanged over 20 months of this combination.

[Bettybuckets]

hi Sharon, scans will come regularly3 months. I enjoyed the nearly year while I was on Verzenio as the GI issues were not too bad…for me. I found it often exciting as the bouts come on fast- called nature Poos.. lucky me as my walks weee in lonely woods and not in city streets! my suggestion is to keep individual baby wipes with you at all times and just go live your life. Don’t let fear of a mishaps keeping you from doing things. Sure it’s true that “Hilarity will ensue” but staying at home and worrying may make you feel worse for missing out on fun. This is trite… but this too shall pass- meaning: being on Verzenio won’t last forever and then you will be onto some other treatment that if you are like me you will have mixed feelings about… for me next up was Capecitibine… “oh good it’s working with my neck lymph node back to being small and my scans good… but with HFS causing my feet to burn and swell limiting my waking” But on the plus side I suddenly have none of the fatigue I felt on the both CDK4-6 that I was on for 2 years. So now I have energy… but bummer I can’t walk long as I want because my feet will blister if I do too much…

The point is that Verzenio is a good drug…with some GI issues that csn be tough. Dont give up cuz of GI- it settles down to be less often. Plan ahead knowing you may have a few funny stories to tell snd if it stops working or the GI are unbearable for you… there are other drugs that will keep you going.. but all in their own time. I am just back from a few weeks in Switzerland visiting my son in his new home. It was wonderful.. so my advice is to just get out there..lots of living left to do!

Hope that was helpful.

Beth

Just back from Zurich Switzerland

[mariootsi in reply to Bettybuckets]

Glad you enjoyed your visit. Beautiful picture! I have friends visiting Switzerland this week!

[Sharonpat in reply to Bettybuckets]

Thata great Thankyou so far iv not had any issues at all with verzenio or letrazole and I’m on the highest does so fingers crossed onwards and upwards

[Hidden]

Hi. I'm in the UK, diagnosed With De Novo MBC August 2022. I've had CT scans every three months, and MRI scans every six months, I have mets in bones, lungs, and liver. At March's scan oncologist was pleased with results so has moved CT scans to every four months. I'm not on Letrozole and Verzenio, but Letrozole and Ibrance. Hope you continue to do well.

[mariootsi]

I have scans every 3 months.

[Totheriver]

I have a bone scan and a ct scan every 4 months

[love2golfwell]

I have scans every 4 months in the U.S. Glad you are doing well on the medications. Hope when you do have a scan that you get good results. Sending hugs.

[Sharonpat in reply to love2golfwell]

Thankyou so much x

[Eliactida1955]

you should’ve getting one soon like3-4 months after but depends on the dr.

[CatLady2022]

I’m on same combo and we do cts every three months with blood work once monthly. I have GI issues on verzenio. I’m on 100 twice daily due to white blood cell count is low from birth so they started me out on a lower dose from the beginning and my WBC count seems to hover at a good level for me. Good luck!