Infusion for bone strength

[Justme153]

Has anyone on here when first diagnosed ER+Hers2- not metastatic and onco DX test was low number treated with Arimidex been given infusions for bone strength as a preemtive treatment to prevent bone cancer. I have never heard of this but my sister inlaws oncologist is doing this.

[Bettybuckets]

yes I had comets given to me a after my BC diagnosis which was in 2004… my oncologist gave me 6 months of zometa soon after I finished treatment… because I had some high risk features ( node pod etc) and I think that is partly why MBC wasn’t found in bones until 2020. My Dr is elderly now but still a rock star and last week ran down to read my abdominal Ct for me when I had surgery scheduled early the next morning. He called from the radiology reading room and gave me the bad news that it was spread to liver and throughout. He quickly had new med Capecitabine overnighted and off we go. Maybe because he is slowing down and focuses on a few of us now, but I just don’t hear stories of this level of care. I am so grateful that he is keeping me going. I played pickle ball today and then swam laps. I know the wheels will fall off but I try not to be anxious about it and enjoy each day. Hope we all can keep doing what we love for as long as possible.

[Justme153 in reply to Bettybuckets]

What is node pod? Could you tell me what high risk features you are talking about. Im wondering if because she had a hip issue from baby on and a few years ago had a surgical procedure done on it. Then about a year later she fell and shattered her shoulder and had to have major surgery on that. Like they say areas of your body that are injured during your life seem to be succeptable to arthritus later in life. Im wondering if it would also make those areas easy targets for cancer cells to invade.?????

[Merma]

Sounds like a good idea. What did the dr give her for bones?

[Justme153 in reply to Merma]

She said once a year Reclast

[13plus in reply to Justme153]

she has to have any major dental work done before she gets this - if she is prone to needing more intense work than a cleaning

[Andersl in reply to 13plus]

Be aware that major dental work may be needed in future years. If so it will be risky. We're not generally told this or that this drug stays in your system for 10 years.

[Lakincaid]

I am stage IV but have been receiving Zometa infusions. My onc told me that although it is not labeled this way, they have found that the bone grown while on the med is more “cancer resistant”. Maybe that is the thought process behind doing it now.

[RLN-overcomer in reply to Lakincaid]

Interesting 😇

[Aquadog]

That is my diagnosis pre-metastatic - went through chemo, lumpectomy, radiation then put on Arimidex and had Reclast for a couple years. Tried another one, too, Prolia maybe? But I've never heard of it being a preventative treatment. Cool if it is, but it didn't work for me - mbc to bones only eight years later. Maybe there's a new one out there. Couldn't hurt to try. Best of luck to her - hope it works! BTW, I'm 6 years into my Ibrance/letrozole/Xgeva treatment and doing well - walked 4 miles this morning.

[TammyCross in reply to Aquadog]

Lucky you! I had all the above initially, except I declined the infusion for bones biannually-- I forget which one. Recurrence 13 years later. Went on Ibrance, fulvestrant and Xgeva. Xgeva gave me ONJ and I lost many teeth when jaw bone died. Ibrance and fulvestrant were great, but failed after two years. Just shows we all have a different response.

My oncologist originally said I should get the infusion for bones because it MIGHT be preventative. Seemed to be in some cases. So if it didn't prevent bone mets 8 years later, and several years after Reclast or prolia, doesn't mean it didn't work for you (since you stopped), or that it might work for someone else.

[Hopeful4Cure in reply to Aquadog]

Aquadog- yours is the same as mine. Actually lumpectomy, chemo, rads and then anastrozole, same as arimidex. Good for 2 years until stage 4 2019. I was then given zometa too and I remember seeing the scan with a bit of healing on the lesion on my hip. I still get the zometa every 3 weeks. I do not believe that if it healed one spot, that cancer will not hit that spot again, because it has. Secondly, I was given additional rad on lumbar for pain-year later, that same spot is now riddled with cancer. I do however, take vitamin d3 oil under my tongue 3 times a week at 50mil from a dropper. Just my experience.

[Andersl in reply to Aquadog]

It's not preventive