Cancer moved to bone marrow

[Boogitymom]

Had my follow up visit today which started with doctor saying “good catch, I had missed that in your labs”. Tumor markers have been steadily going up for the last 9 months. Based on labs, it appears that cancer has moved to bone marrow or I’ve developed some other bone marrow disorder. Waiting to schedule a bone biopsy. Just wondering if anyone else has experienced this?

[Titaniam_Turtle]

I have not heard of that for breast cancer. Robin Roberts a tv host/ reporter on Good Morning America did develop a blood disorder while she was being treated for cancer. I apologize, i can't remember the details. I know it increased her recovery by many months. She has probably written a book about the experience or google her name and see what comes up. Good luck. My prayers are with you for a simple and easy resolution to this. Cancer and treatments are so complicated we need a break.

[Boogitymom in reply to Titaniam_Turtle]

Thank you for the prayers

[SoCalLady]

Have you had your bone biopsy yet ? Any conclusions? My tumors have also steadily gone up in the last several months . Well up in the Thousands. I'm on Xeloda for bones & liver. Bones look stable, liver reduced, but markers still go up.

[Boogitymom in reply to SoCalLady]

Scheduled for 8/26

[SoCalLady in reply to Boogitymom]

How did it go? Any updated that you can share?

[Boogitymom in reply to SoCalLady]

After 5 1/2 years I’m saying good-bye to my pals Ibrance and letrozole. I now have progression to my bone marrow. I start faslodex tomorrow. Onc thinks I’ll tolerate it well. I’m a little anxious about the faslodex injections and getting a good nurse to do it. Thanks for checking in.

[BluHydrangea in reply to Boogitymom]

Hoping Flasodex will be a good pal from now on. ❤️

[luckysmom13]

Did you already have bone mets? I have bone mets and various reports (I think MRIs) have mentioned the bone marrow is involved. My oncologist has never mentioned it. I'm curious to know the significance for you.

[Boogitymom in reply to luckysmom13]

Yes, I was diagnosed de novo about 5 1/2 years ago and have had great success with Ibrance and letrozole. For the last 4-5 months, I’ve been struggling to maintain my labs, even after reduce Ibrance dose from 125 to 75 mg. In my labs last week there were nrbc cells that I hadn’t seen before, evidently there are not supposed to be in your blood but maintained in the bone marrow. Can’t get biopsy until 8/26, so much for a stat order

[luckysmom13]

I was diagnosed 5 1/2 years ago too. Shitty thing to have in common! Keep us posted on this!

[RLN-overcomer]

Greetings Sister/warrior I can't add any information, but I will pray DR. GOD will provide the treatment that will destroy the cancer that has no right to your Holy temple. Amen 🙏😇🙏