Getting CT and bone scan: I am taking... - SHARE Metastatic ...

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Getting CT and bone scan

PLASEM profile image
46 Replies

I am taking Verzenio and Falsodex and my tumor markers are going up, I am worry

I am having CT and bone scan on June 13

I need prayers and advice, thanks

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PLASEM profile image
PLASEM
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46 Replies
Barbteeth profile image
Barbteeth

I’ll think of you tomorrow...the rise in tumour markers may mean nothing...but if there’s a problem your oncologist will have a plan...we’re lucky that these diagnostic tools are available...keeping us one step ahead of the monster that spoils our lives

I’m anxious at present as I have to have radiotherapy for a liver lesion in a few weeks...it’s ruining my life...I can’t think of anything else...I do so understand how you feel

The weather here in UK is absolutely crap..heavy rain windy and cold...I try to distract myself but tricky when it’s like this....went to cinema yesterday afternoon..saw ‘late night’ with Emma Thompson..that took my mind off my problems but it’s hard to be chirpy when worrying all the time

All the best

Barb xx

in reply to Barbteeth

It is the waiting that is the hardest. 😞. Is radiotherapy also called radiation?

Barbteeth profile image
Barbteeth in reply to

Radiotherapy just means treatment with radiation

Barb xx

in reply to Barbteeth

Ok. I assumed it did but wasn’t sure. 😉. Different countries use different terms. I had radiation treatments to my hip and base of skull for pain treatment.

Barbteeth profile image
Barbteeth in reply to

We’re the side effects awful?

Barb xx

in reply to Barbteeth

I had my hip and head done. No problems with my hip except for the nausea and ask for something to take before you even start. The radiation on my head caused damage to my mouth and throat and they were full of sores for about 6 weeks

PLASEM profile image
PLASEM in reply to

Sarcie it is terrible to have sores in your mouth I hope you get better take care and God bless you

in reply to PLASEM

This was a year ago but thank you. I was just letting Barb know what my side effects were.

PLASEM profile image
PLASEM in reply to Barbteeth

I hope you can have your radiation with out. side effects, and it can be an effective treatment I will pray for you

Barbteeth profile image
Barbteeth in reply to PLASEM

Thank you

Barb xx

MyMiracle13 profile image
MyMiracle13 in reply to Barbteeth

Prayers for you too Barb

Have-faith profile image
Have-faith in reply to Barbteeth

I just saw the commercial for Late Night this morning. Was there some humor in it that you were able to notice despite your distractions? I would like to see Rocketman. Have you seen this too?

Hope you are having a good day today.

Today is my Friday. Off the next two days. Running solo as boyfriend is away. I hate to say I dont mind his travels now so that I can do NOTHING. He is like the Energizer bunny. Most times this is great as it keeps me moving. This week after intense work I need alone time. I did book a sweat session for tomorrow. Website is shapehouse.com. it is here in the states. I love it. They wrap me in a heavy infrared blanketlike a burrito in a quite room with musics or a tv to watch for 50 minutes. You sweat like crazy! I love it! Even more than the sauna. Anyway....got to get to work now. Faith

Barbteeth profile image
Barbteeth in reply to Have-faith

Hi Faith

Yes saw Rocketman last week...very good...though I preferred Bohemian Rhapsody

I must say I didn’t find late night particularly funny but I adore Emma Thompson...she carried the whole film in my opinion

Enjoy your free time without dynamo man!!!.... mines the same..can’t sit still

Barb xx

mariootsi profile image
mariootsi in reply to Barbteeth

Prayers to you too Barb. So stressful. Worry is another enemy with this damn cancer.

I will be thinking of you. I’m not sure what other meds you have taken but there are a lot of drug combos out there. My doc has explained how I would move to a different drug when mine stop working. It’s hard to not worry but try and keep busy till the scans.

PLASEM profile image
PLASEM in reply to

Thanks, I took Ibrance Letrozole Falsodex and now Verzenio with Falsodex what it bothers me new medication with new side effects and see if it is going to work

Francesca10 profile image
Francesca10

Sending 🙏🏻🙏🏻🙏🏻And hugs. My tumor markers have risen a little every month- no change in treatments. ♥️

PLASEM profile image
PLASEM in reply to Francesca10

That is good for me the last time my tumor markers were going up I waited then I had CT and it showed progression the bone scan it was ok but on the CT there were new sites

Francesca10 profile image
Francesca10

Yes usually mine rising means new findings. Agh! It doesn’t go up much but knowing what it means for me I feel discouraged. Just had them done Friday- results today. Went up again. I just want stable. I know how you feel💕

Have-faith profile image
Have-faith in reply to Francesca10

Praying for all of us!

PLASEM profile image
PLASEM

Thanks, I try not to think about it but at nights I feel anxious and specially now I am having a new pain on my middle right abdomen site, I saw a gastroenterologist waiting for CT of abdomen chest and pelvis results

Sunnydaz profile image
Sunnydaz

Praying for good scan results and sending positive energy to you. Maybe you can listen to a positive meditation tonight. I listen most nights and they literally put me to sleep before they are over. Waiting for results is hard. I agree with Sandra getting out in nature always seems to help.

Robin xo

PLASEM profile image
PLASEM in reply to Sunnydaz

I will do some meditation while I wait for the results thanks

kduck profile image
kduck in reply to PLASEM

Sending prayers your way 🙏🙏

MyMiracle13 profile image
MyMiracle13

I’m one year and four months from MBC diagnosis and each time I have my tumor marker test and scan, I feel terribly anxious, scared and want to give up. And yet I keep on...

Prayers for your upcoming scan and somehow may you (and all of us) find peace and tranquility before tests and scans.

Maria

PLASEM profile image
PLASEM in reply to MyMiracle13

Thanks yes being anxious with the labs and scans are part of our life Hod bless you

Mindysooty profile image
Mindysooty

Sending you positive thoughts and prayers. Stay strong. Big hugs x

PLASEM profile image
PLASEM in reply to Mindysooty

Thank you

Selmac profile image
Selmac

Praying for you. My scans are next Wednesday.

PLASEM profile image
PLASEM in reply to Selmac

Thanks and I will keep you on my prayers

mariootsi profile image
mariootsi in reply to Selmac

Good luck! Will be thinking of you Wedsnesday.

mariootsi profile image
mariootsi

Sending many prayers, hugs and love your way for a good scan. Thinking of you today.

PLASEM profile image
PLASEM

Thanks, just I tried to be busy, I took care of my grand daughter She brings me happiness to my life, I will pray for you

PLASEM profile image
PLASEM

Thank you

Have-faith profile image
Have-faith

Hi there. You are not alone!! I had the same experience with same treatment just in the last two weeks. I am in the process of getting next line of defense! Aromasin and Afinitor. Your onc will have a plan for you! Hang in there.

Faith

PLASEM profile image
PLASEM in reply to Have-faith

Faith I was reading about my next medication can be Afinitor but my oncologist keeps telling me I could do chemotherapy infusion, God bless you

Iwngca profile image
Iwngca

You are not alone. I was on Ibrance, Xgeva, and faslodex. My cancer markers spiked to nearly double after going down significantly. My wbc and neuts were in the toilet. I was removed from all meds and got a cat scan. It showed a new growth right next to the one I previously had on my sternum. Crazily enough, the original growth had shrunk. New growths were found on my liver, so now I will get a liver biopsy next week. My good news is that my wbc and neuts are doing better now that I am off all meds. Waiting is very hard. I truly am amazed at how LONG everything takes. Just finding a surgeon to do the biopsy next week was hard. I was lucky. One of my nurses knew one personally and had some pull. Let's stay in touch. I think we have much in common. I sincerely hope that your news is good. XXOO

PLASEM profile image
PLASEM in reply to Iwngca

I am sorry that you have progression of your cancer

Just waiting for scans, biopsy and new treatment is stressful

You did feel any symptoms related to liver like nausea vomiting or pain on your right side of your abdomen

Take care and God bless you

Kimr2081 profile image
Kimr2081

Sending prayers to you. I don't have any good advice at this point but just to hang in there and lets see what the scan shows. There are so many other options out there.

mariootsi profile image
mariootsi

Sandra,

My scan is in 2 weeks also! I'm such a wreck! How does the time in between scans go so quickly?

mariootsi profile image
mariootsi

Mine is on July 28th.

PLASEM profile image
PLASEM

Thanks

PLASEM profile image
PLASEM

Congratulations for your wedding anniversary my birthday is on June 24 and my husband’s birthday is on July 3

PLASEM profile image
PLASEM

I had my scans yesterday drinking that contrast solution it gave me nausea and I did not drink water till was done but today I started with urinary track infection

Waiting for the results of the scans

PLASEM profile image
PLASEM

I will think about on that day happy birthday

Liz1955 profile image
Liz1955

I am taking Verzenio and Arimedex...Had my ct scan on June 14...I will let you know about my results. Keep us posted please. My oncologist does not do tumor markers.

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