Has anyone else heard much about this... - SHARE Metastatic ...

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Has anyone else heard much about this?🙏🏼

AutumnLove profile image
20 Replies

dailymail.co.uk/health/arti...

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AutumnLove profile image
AutumnLove
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20 Replies
Ntash01 profile image
Ntash01

Hey Autumn

I haven’t heard of this until now -thank you for sharing this encouraging development. I’ve been feeling a bit low and this has given me a little boost.

Yesterday was my 3rd year with my stage 4 diagnosis (had MRI to celebrate 😂) and oh my does time fly and the only clear thing I remember hearing at the time was “we can’t treat it, but we can control it”. It took me ages to realise it was code for “here’s a piece of string (aka your life) but we don’t know how long it is but we will be extending the string (aka treatment)”. All I heard was your a dead woman walking! A massive loop the loop rollercoaster ride of emotions for sure!

I’ve been on Cape since August 22, I’m hoping for stable results at least!

Happy holidays & and the very best for 2023!

Nx

jersey-jazz profile image
jersey-jazz in reply to Ntash01

Dear Ntash01 - - Your post reminded me that it will be exactly three years on New Years' Eve that I went for the biopsy of my liver. Then, I knew. Four days later I was on a ship bound for the Panama Canal and out of contact with anyone. When I returned at the end of January, I was told, officially, that it was metastatic and that it was" incurable". I try to think of metastatic cancer as chronic rather than incurable.! What is your thinking now? Are you in pain?

Ntash01 profile image
Ntash01 in reply to jersey-jazz

Hey Jersey… why do crappy things happen during holiday seasons 🙄

I’m not in pain and I didn’t get the stable I’d hoped for following 2nd MRI on Cape. Just getting my head around things - will update shortly in a new post so it doesn’t get hidden in this thread as I’d like the advice/experience of others - hope you don’t mind, I’m still processing.

Happy holidays

Nx

AutumnLove profile image
AutumnLove in reply to Ntash01

Yw!😊Merry Christmas🎅🏼🎄 and all the best in 2023!

Georgelila profile image
Georgelila in reply to Ntash01

Dear Ntash01 that’s exactly how I’ve been feeling . 3 years this May 13 and “highly treatable but not curable” was supposed to make me not lose it - but every bit of time that goes by you realize it’s a guessing game. I have good days and not so good (this Christmas was a tough one - keep saying rally rally it’s Christmas! The kids are home!) but just dreading what if it’s my last. And I’m not a wallower this has only recently been happening. Anyway big hug to you and the ladies and thanks Autumn love for posting this encouraging article . ❤️

Kerryd22 profile image
Kerryd22

I read this article when it first appeared but unfortunately the results weren’t good for everyone. A treatment that has a 30% success rate is great if you’re one of the 30%. Researchers are working on improving that number but it’s probably still a while off.

medicalxpress.com/news/2022...

It’s interesting to see advances and there’s been several new treatments released this year so there’s hope ahead.

Best521 profile image
Best521

I also saw and posted this article a few weeks back. I am keeping my eyes peeled for similar trials near me, but I might be open to a trip to NYC and Mt. Sinai. It’s always worth a phone call or email to the doctors to find out more. These vaccines and T-cell therapy are opening up new possibilities. There is so much in the pipeline

TammyCross profile image
TammyCross in reply to Best521

I am fairly near Mount Sinai. If you get into a trial there, let me know!

Best521 profile image
Best521 in reply to TammyCross

I definitely would let you know and update the board. Right now things are going very well on Ibrance and Letrozole. However if there is a change I’m calling Mt. Sinai.

Godbeforme profile image
Godbeforme

It makes me sad to think they have a shot that could cure us and has been proven safe and is cheap to make, but not offering it to us who are dying with this disease, yet I get a pill that costs 17k a mo. and doesn't cure me. I would love to take a shot at this vaccine, why are we denied compassionate access or whatever it's called? I'll take the 3 in 10 odds! better'n ZERO chance of being cured!

24681 profile image
24681 in reply to Godbeforme

I agree!

mariootsi profile image
mariootsi

Sounds like a miracle

Tolife_18 profile image
Tolife_18

I have not heard about the development of this particular vaccine. Sounds very promising.

Thank you so much for sharing!

AutumnLove profile image
AutumnLove in reply to Tolife_18

Yw! Merry Christmas everyone!🎅🏼🎄

Godbeforme profile image
Godbeforme

sorry for my sour grapes, but all evil under the sun is usually down to MONEY and GREED, those are the facts, pure and simple! Merry Christmas everyone and God bless you and heal us all in Jesus name, amen!

kearnan profile image
kearnan

I do not mean to burst anyone's bubble, but it is the Daily Mail, not much more than a tabloid so I would not believe anything they would print.

Best521 profile image
Best521

Great follow up article. Biggest Medical breakthroughs of 2022. The cancer vaccine is listed as #5. Merck, Moderna, Vanderbilt and Mt. Sinai all highlighted as working on a vaccine. So great to see all these developments

dailymail.co.uk/health/arti...

AutumnLove profile image
AutumnLove in reply to Best521

Awesome, Ty for sharing!🙏🏼😊❤

Godbeforme profile image
Godbeforme in reply to Best521

great article, uplifting! <3

kokopelli2017 profile image
kokopelli2017

hi AL.

I was lazy about reading the article...lol....but I finally got to it....so that is why I am jumping in at the end here. but happy I did take the time to read. would that not be amazing? thanks for sharing some hope🙏

happy holidays to you and your family🌲🎅⭐

carole XO

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