Ankle Pain

[CatLady2022]

I’m on verzenio and letrizole. Recently I began having ankle pain, so bad that the pain meds I’m taking will only lessen the pain when I walk but doesn’t completely take the pain away. Anyone else experiencing ankle pain/foot pain?

[hopenowandtomorrow]

Dear CatLady: Any pain that falls into the 3 P’s (painful, persistent & progressive) needs to be evaluated by your oncologist. Please have it checked out.

Praying for you!

❤️🙏❤️

[CatLady2022 in reply to hopenowandtomorrow]

I was scanned today but not my feet. I don’t see my oncologist until Thursday for those results.I will definitely mention my feet problems because it is a new symptom.

[TammyCross]

Where is it in your foot/ankle? I had bad joint/bone pain on Letrozole -- in my hips, but other people get it in other joints. So bad I went off it. Now, on Verzenio and Arimidex, I have a scary pain in my calf. It is not incapacitating, but little pains in many spots, knee, foot, and calf. And now my hand. Not sure what that is, but I am attributing it to Verzenio. Feels like muscle cramps. Took aspirin, no effect. Let us know what you find out.

[CatLady2022 in reply to TammyCross]

I looked up posterior tibial tendinitis and my pain is in that exact location, back of the heel. I am already on oxycodone for pain as I have cancer in all bones. The pain meds lessen the pain in my feet but do not take the pain away entirely. On verzenio, I have mostly stomach issues but who knows for sure which med is causing which pain. I hope you find relief for your pain.

[LadyKatarina]

While on Letrozole I had a pain in my foot also--the ortho PA called it posterior tibial tendonitis. (If you look that up you can find the location!) I had been out in gardens a lot--I volunteered at a public garden plus my own! Walking on uneven ground was difficult. The ortho PA thought the letrozole was causing it--and my onc at that time thought that was possible too. They gave me one of those huge walking boots--which was so cumbersome I hardly wore it. I did rest the foot a lot and kept it in the same position as if I had the boot on. It healed. They also gave me a smaller ankle brace to support the foot. I did stop the letrozole around that time due to the severe mental side effects. I could handle the tendonitis--but not the mental anguish those AI's can cause! Best to you!

[CatLady2022 in reply to LadyKatarina]

I looked it up and that is exactly where my pain is located. I am considering getting an ankle brace or some type of brace to keep it stabilized. I have an appointment tomorrow to get results of scans but my feet were not scanned. However, I will discuss this pain with my oncologist. Thanks for the reply.

[LadyKatarina in reply to CatLady2022]

My pain was at that little bone protuberance that is right above the arch on the inside of the foot. I suppose the tendon itself stretches a long way--therefore "tendonitis" can be anywhere along the tendon. I hurt it when gardening. The first time it got better--the second time was worse and I needed to stay off it for awhile. They did an x-ray--I can't remember if that was diagnostic or not. I went to an ortho clinic, not my oncologist. I had no mets to any bones at that time. Letrozole and anastrozole inflame the synovial membranes around the joints AND inflame the membranes around tendons--a rheumatologist told me. That is why so many get trigger fingers. The inflammation happens in 50% of those taking the drugs. I had severe joint pains in 8 joints while on anastrozole--it was pretty bad! Then was on fulvestrant--much better. But I kept having fatigue--and my onc talked me into trying letrozole. Those AI's are the worst drugs. I think I got permanent cognitive disability from them. That can happen in some older women--my new oncologist quoted research done at LA Medical Center. What a journey! Best to you! Kay

[wmaker]

Gout arthritis? ask for uric acid check.

[CatLady2022 in reply to wmaker]

Thank you!