Scantastic Results!

[Gingerann1]

Had my CT and Bone Scans Monday and met with my Onc yesterday. Results were available online Monday so I already knew that everything was clear and I’m still in remission…Yay! We have decided to move my scans to every six months until something shows (hopefully not for a while). I mentioned when doc was leaving the room, “ see you in Feb!” He said, “oh yeah! Have a Merry Christmas and Happy New Year!” It was a great moment, hearing about having extra time and not having to think about scans for half a year! I wish all of us could have that feeling….I know my time will come to deal with progression but basking in good moments helps get us through the bad days.😎

[Adele_Julia]

Praise God ! What treatment and supplements are you on?

[Gingerann1 in reply to Adele_Julia]

Hi! Got to NED in March taking Ibrance 125 mg and Fulvestrant shots for 15 mos. I do not take supplements although I may start taking B12 and Folate.

[Adele_Julia in reply to Gingerann1]

Blessed ! Wonderful for you.

[Red1246 in reply to Gingerann1]

Wow! So good to know its possible. Congratulations!!!

[LastRoadTrip in reply to Red1246]

Congratulations. That's among the best news. Praying we all will get that kinda news💐💐💐💐🌹🌹🌹🌹🌹

[Gingerann1 in reply to LastRoadTrip]

Thank you! I pray for that everyday.

[Leefromct in reply to Gingerann1]

I'm on the same combo. How long on this treatment did it take to get NED

[Gingerann1 in reply to Leefromct]

Hi Lee! I was diagnosed with a pleural effusion on my left lung in Nov of 2020 and started Fulvestrant shots in Dec 2020 and Ibrance in Jan. 2021. In Jan I also had a thorocentesis procedure to drain all the fluid from my lung which did not return. Presence of this effusion kept getting smaller and smaller until March of this year until it was totally gone. So 15 months from start of treatment to NED. I know others have had this result as well but may have had Mets in other parts of their body that are stable or have had progression. I am blessed to have only had the one Met so far that is no longer there.

[Adele_Julia in reply to Gingerann1]

I was diagnosed in Nov 2020 too with plural effusion to my right lung. I removed the right breast and the tumor markers started to plummet. I’m on Piqray and Faslodex. Praying for a great scan in late August !

[Gingerann1 in reply to Adele_Julia]

I will be praying that you receive great news. Big virtual hug! 🤗

[Itisfinished in reply to Gingerann1]

Yes maam you are truly blessed. Praise God! Pray for all of us who are in this raging battle. Ty

[Gingerann1 in reply to Itisfinished]

You are all in my prayers daily…🙏🏻

[Teddielottie]

Great news ! Celebrate ! Hope this treatment continues for a very long time along with 6 monthly scans . x

[Nature613]

That is wonderful news . May you have many more of those great scan results. Best wishes!

[Thatflowerlady]

Enjoy ! What beautiful words to hear.

[Mary115]

I'm doing a little happy dance with you. Good news to read... smile producing

[Gingerann1 in reply to Mary115]

Thanks Mary! One of the best parts for me has been having my Onc do a happy dance with me. When I first got to NED in March he busted through the door, tears in his eyes, saying “did you see the scans!!! I’m so happy for you! This is as good as it gets!” It was quite a moment and feeling I won’t soon forget. He was just as excited when I saw him Tues. to confirm no change. I love my Onc team which is so important as these folks (a lot of them) may be the ones seeing me through the rest of my life. I have no doubt that when progression comes they will be so supportive and comforting.

[Mary115 in reply to Gingerann1]

Ginger Ann.. Wow.. I am so glad that you have such a team accompanying you. Your post struck me as so realistically hopeful and grateful. What a combination to start the day.. especially as you have recently dealt with covid.. These are challenging days all around and yet the company we keep makes it not only doable, but joyful with those dancing moments.. Am smiling with you.

[Gingerann1 in reply to Mary115]

Thanks! We did talk about Covid as well on Tues and Onc said should I get it again I do not need to stop the Ibrance. They now have enough data to show that continuing to take it does not cause any issues regarding recovery. I was off for almost 2 weeks instead of one this time. I am almost 100% recovered and tested negative on Sun. My husband, the healthier of us two is still testing positive and has a terrible cough and congestion that’s taking it’s time clearing up. Go figure…

[Mary115 in reply to Gingerann1]

Go figure indeed... Glad you are feeling a bit better, and hoping he will bounce back soon.

[Gingerann1 in reply to Mary115]

Thank you Mary! It means so much to be lifted up by others in the fight!

[Nocillo]

Wonderful news and six months off sounds like a vacation! Congratulations

[Gingerann1 in reply to Nocillo]

Indeed!

[Shafight]

Such wonderful news!!

[RachH20]

Great news! So happy to hear this x

[Ntash01]

Music to my ears… thank you for sharing your wonderful news a definite 6 month vacation… yay you!N x

[Gingerann1 in reply to Ntash01]

Yes! It is a vacation. Glad my Onc doesn’t just stick to the protocol of every 3 months just because….there are other ways to monitor changes through monthly bloodwork that will reveal any necessity to move up the scans. It really will help to enjoy this extra time in remission not to have to have scans. Yay!!!

[Red1246]

Celebrate! So happy for you. 🎈🎉🎊🎈

[susiemarmite]

Love it!!

[donnalynnhansel]

❤😄🙏

[LastRoadTrip]

That's Wonderful to Hear for you perseverance pays off in your case.Agree. All Hope is needed and to know it's still there for us all is fantastic.

[Gingerann1 in reply to LastRoadTrip]

Yes, that is my daily prayer that there will be a cure for all of us in our lifetime. In the meantime remission is the best we can hope for and reason to celebrate!

[1711JPD]

Fantastic news! I am very happy for you!

[Justme153]

WONDERFUL!!!! So Happy for YOU!!!!!

[Kcap430]

Wonderful news!!

[love2golfwell]

That is awesome news! So happy for you. Glad your treatments are working. May you stay in remission for many more years to come!

[Gingerann1 in reply to love2golfwell]

Thank you…I am a long way from thinking I needed to get my affairs in order to being in complete clinical remission. It has been quite an emotional ride so far but happy to be in this place at this time. Also, so excited that the reports starting to come out about longer OS (overall survival) rates have improved leaps and bounds. We all need this gift of time so desperately. I have a neighbor 2 doors down from me that is in her 23rd year of living with MBC! This brings such hope with all of the available targeted therapies and the feeling that a cure is getting so close. Although it doesn’t seem like it sometimes we are actually living in an exciting time in the battle with the beast. I will continue looking forward to all of us celebrating together when we finally learn there is a cure….I can feel it!

[Praising in reply to Gingerann1]

Did they use the word remission? My doc says the scans are stable….

[Gingerann1 in reply to Praising]

Yes, complete clinical response and remission. I have only heard these used when scan verbiage states “no evidence of metastatic disease” as is the case with both my CT scans and bone scans in March and August. Previous scan verbiage prior to March stated stable (with no progression) would not be classified as in remission. This is how it was explained to me.

[Trissh]

This awesome news must make you feel wonderful! Six delicious months! So happy for you!

[Gingerann1 in reply to Trissh]

Delicious! Yes!!!😃

[DDIL1]

Congratulations! So happy for you! I’m on same meds except xcheva 6 months in . How long did it take you to get NED

[Gingerann1 in reply to DDIL1]

Hi! I was diagnosed with a pleural effusion in my left lung in Nov. if 2020 and started Fulvestrant shots in Dec. and added Ibrance in Jan 2021. I found out with my March scans this year that I had gotten to NED, so 15 months. Just had scans Aug 1st that show all clear so we agreed to spread out scans to 6 months. I still have to travel each month for my bloodwork and shots so if anything rears it’s ugly head somewhere else (they monitor liver enzymes, etc.) I can always move up scan schedule. Fingers crossed that I won’t have to for a while. 🤞

[DDIL1 in reply to Gingerann1]

That’s such wonderful news!! You must feel like weights lifted off your shoulders. 🙏 you won’t need scans any sooner than every 6 months. Congratulations. Thank you for the details. I’m bone Mets lobular . Trying to get to NEAD or NED

[Gingerann1 in reply to DDIL1]

Praying for you that you get to NED! Big virtual hug! 🤗

[DDIL1 in reply to Gingerann1]

Thank you ❤️

[Likes]

So happy for you !! Yeah !!!! Susie

[mariootsi]

So happy you got good scan results and wonder ful your scans will be every 6 months! That is a gift!

[Gingerann1 in reply to mariootsi]

Indeed!

[hurricaneheather]

it makes the heart happy to read this. celebrate the scan news and you!

[PJBinMI]

Great news! and very hopeful! I've met a number of metsters who have been stable for years with Faslodex, plus no daily reminder cancer pills! I hope you do really well for a long long long time! And it's wonderful that you get scan reports ahead of onc appts so you can think about what you want to ask the onc. Have a great rest of 2022!

[Gingerann1 in reply to PJBinMI]

Thanks PJB! I did ask Tues if you have to be switched from one CDK 4&6 inhibitor like Ibrance to Verzenio is that considered moving from first line treatment to second and he said”good question!, I prefer to call it 1.5!” Since it is the drug and not the type of therapy. He did say that data is showing Verzenio has longer survival data. I knew he preferred Verzenio but didn’t know why. I had already been started on Ibrance when I switched to Duke after a second opinion appt so he said he wasn’t going to change it unless it stopped working. I am glad that we still have Verzenio in our back pocket when progression occurs. I will be staying the course with Ibrance and Fulvestrant until that time since I tolerate both well (just don’t ask my hair!!!).

[Kruza]

Absolutely wonderful news.

[Missmaddie615]

Scantastic results indeed! So so happy to hear this! And to top it off -no scans for six months, Wowza!! I know you already did your happy dance with your doc, but I’m doing a happy dance with you now! 💃💃💃 you truly have been Blessed- May God continue on Blessing you by keeping you in remission! And may He Bless us all in our journeys 🙏

[Gingerann1 in reply to Missmaddie615]

Thank you! Requesting prayers as I continue to pray for all of us on this journey. I feel we are so close to a cure….🙏🏻

[Missmaddie615 in reply to Gingerann1]

Prayers will be said! 🙏

[Fiercefighter13]

That's wonderful news!! Getting news like that is a gift! With all the anxiety, and stress waiting for the scans, and then during them.....great results are simply wonderful!!

[Praising]

Wonderful. I’m every 6 mo now with Mets to bone!! Scan coming up soon. Been off Ibrance as well…it is careful hopeful optimism for sure.

[Corrina97]

Fantastic news!!!🥰xx

[Mumberly]

Thanks for sharing your great news!! Every positive story brings hope to the rest of us ♥️

Kim

[Gingerann1 in reply to Mumberly]

Thanks Kim! There is hope and I get a feeling everyday we are getting close to a cure.

[BlessedMimi]

Such wonderful news!! So happy for you!