Progression in liver

[Hm50]

Hi all. Just had results of ct scan not good!!! Bone mets stable but significant progression in liver which has resulted in being put back on oral chemo tablets. Anyone on capricitribine (think that’s how it’s spelt) can give me any advice and anything positive please. Not in a good place now

[MyMiracle13]

Hello, I have been on Capecetabine (Xeloda) since October 2020. I still am on it now but since July 2021, because of liver mets, my oncologist included Navelbine oral capsules to the mix. My latest tumor markers fell by 52% (CEA) and 43% (CA15-3) so the response on this med combo is good. My oncologist said that he has 2 other patients on this combo and the response has also been good. The side effects I am experiencing are thinning hair and sometimes fatigue. Hope this helps.

[Hm50 in reply to MyMiracle13]

Thankyou so much for your reply. It’s good to here that this works and I hopefully will be on the right track again. It’s so disheartening when it moves to yet another place and grows significantly. Prayers for you and thanks again

[Hidden]

Oh, dear HM50! Definitely *not* what you want to hear re: a scan report!! I'm so sorry...

I hope the new meds *do their job* and push things back in your liver!

I'm so often impressed by how well folks here do with a change in treatment!

Be well,

Lynn

[Hm50 in reply to Hidden]

Thanks Lynn and it’s definitely not what I wanted to hear? My head is al over the place as I thought I would get a bit longer before needing chemo AGAIN after it only finished in February. The original bone cancer is stable so at least I hope that’s how it remains and hopefully this new medication will hammer down the liver mets. They are are really good crowd on here especially when you struggling with diagnosis. Love and thoughts to you. Helen xx

[Totheriver]

So sorry to hear this and hope and pray you will do well with your new treatment 💕. Theresa

[Hm50 in reply to Totheriver]

Thankyou so much

[Kaydub]

I just started the same treatment. So far has been tolerable. I was told to moisturize to prevent hand and foot. Mentally it was hard for me to adjust too because this was the first time I was symptomatic and had pain. I wish you peace of mind and strength on your journey.

[Hm50]

Thankyou so much for your reply. How is your treatment going? It’s awful having to get your mind into having it. Mine is trying to get my head round it moving to an organ which I’m finding so scary.

[mspti8383 in reply to Hm50]

I agree. The fear is there. Totally understand since many of us are in the same boat.

[Kaydub in reply to Hm50]

So far so good but won’t know until they do my markers next week. Mine was already in the liver at diagnosis for MBC. It was stable for a year on ibrance. I try not to let the fear take over but it’s always there. I find hope in new drug development. But some days are certainly harder than others.

[Rubyjude]

I have been on capecitibine for 3 cycles - on my fourth now. You must regularly moisturise your feet with 10% Urea cream. I do it twice a day. That seems to have stopped the hand foot syndrome getting worse. Oral hygiene is really important. After cycle three I got severe oral thrush and my fourth cycle was delayed by a week with a reduced dosage. Otherwise it seems do-able. Had a scan last week and waiting for the results to see if this particular treatment is working. My onc says that many ladies do well on this drug. Hope that will include me! Good luck.

[Hm50]

Hi pleased you doing well. Can I just ask where you got the cream from as cancer nurses has mentioned moisturising feet starting now before chemo starts. I’ll keep an eye on oral hygiene too thanks for that info. I hope you get great results and have heard that it has good results. Let me know how you getting on please. Sending love