Hi Minou82 I am a fellow canadian , which province are you from ?
I am glad they lowered your Ibrance dosage for you , it baffles me that they start it high and then lower it . Apparently they say it is just as effective at a lower dosage .
Welcome to the group but sorry you need to be here. This is a group of amazing women willing to share their experiences & knowledge on this journey of MBC
Luann
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Hi l am Toronto They start off high for two months too see how we react .
TO is about 3 hours from where I am . You will have access to wonderful drs and treatments there as it is such a large population of people . I hope the lower dosage has less side effects for you , I know the lower dose helped me . I got 24 months of stable reports before I needed to change treatment .
Take care
Luann from Ontario
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I hope so too.....its not a easy road I am Happy 😊
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Why did you have to change Dosage and to what meds?
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The dosage of Ibrance was lowered to 100 mg because my blood counts were too low and not being able to regain in the week off . The cycles were needing an extra week off each time. I had also been feeling poorly from side effects. Then I had a scheduled CT scan and it showed Mets in my liver so my oncologist suggested that I needed a treatment change . During this time I also had a swelling of a lymph node in my neck , I had a biopsy it had shown that my HER2 status had changed to HER2 positive.
I switched to an IV a chemo , Paclitaxel, herceptin & perjeta.
From what I have read many many people get very effective treatment with the lower dose of Ibrance for a long time .
Wishing you the best !
Luann
Hi ..l hope everything gets better for you ...l been on 125mg for just two months and now stating 100mg and Letrozole...l am good after 21 days...back on ibrance l get the sweats for three days then levels off....after work eight hours l find myself falling asleep relaxing or sitting on couch..Lol..Quess its a good thing as l have insomnia for years not used to sleeping like that...Hoping my cancer stays neutral...Will know with ct scan in August
Blood work nurse bruised my arm badly..never had that before
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