May 12 lowered my ibrance to 100 from1 25
White cells bit low but higher then last time
Everything is good ..Doing bone injection Monday
They inject it under the skin
Made a list this time of 6 questions to ask
I want too know everything
She is a good Doctor to talk with
All answered Positive
its a good Day
Smiles for all the Ladies going through this Journey
Glad you're doing well. Love the pic. Are those doves / rabbits & what are they wraped in?
Love Doves ❤️
Lol ...Looks like feathers they are wrapped in
Hi Minou82 I am a fellow canadian , which province are you from ?
I am glad they lowered your Ibrance dosage for you , it baffles me that they start it high and then lower it . Apparently they say it is just as effective at a lower dosage .
Welcome to the group but sorry you need to be here. This is a group of amazing women willing to share their experiences & knowledge on this journey of MBC
Luann
Hi l am Toronto They start off high for two months too see how we react .
TO is about 3 hours from where I am . You will have access to wonderful drs and treatments there as it is such a large population of people . I hope the lower dosage has less side effects for you , I know the lower dose helped me . I got 24 months of stable reports before I needed to change treatment .
Take care
Luann from Ontario
I hope so too.....its not a easy road I am Happy 😊
Why did you have to change Dosage and to what meds?
The dosage of Ibrance was lowered to 100 mg because my blood counts were too low and not being able to regain in the week off . The cycles were needing an extra week off each time. I had also been feeling poorly from side effects. Then I had a scheduled CT scan and it showed Mets in my liver so my oncologist suggested that I needed a treatment change . During this time I also had a swelling of a lymph node in my neck , I had a biopsy it had shown that my HER2 status had changed to HER2 positive.
I switched to an IV a chemo , Paclitaxel, herceptin & perjeta.
From what I have read many many people get very effective treatment with the lower dose of Ibrance for a long time .
Wishing you the best !
Luann
Hi ..l hope everything gets better for you ...l been on 125mg for just two months and now stating 100mg and Letrozole...l am good after 21 days...back on ibrance l get the sweats for three days then levels off....after work eight hours l find myself falling asleep relaxing or sitting on couch..Lol..Quess its a good thing as l have insomnia for years not used to sleeping like that...Hoping my cancer stays neutral...Will know with ct scan in August
Blood work nurse bruised my arm badly..never had that before
Stay Happy 😊
Weight up index down.
Dentist Thursday to check ONJ I have.
Had to share this beautiful Poem
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