New results- any experience with this?

[Malibu5]

Just received my CT scan results. Everything is the same “stable” except one tumor went from 1.5cm to 2.4cm. Is that significant? My doctor is out of town until 1/4. Seems like a long time to wait for an answer. Any thoughts about how to interpret that?

Happy Holidays!

[Malibu5]

Thank you for the good adviceHappy Holidays !

[Lulu4545]

Hi Sandra,I have been reading your posts and I am really interrested in the way you are dealing with your mets. I read above that you have had progression in some of your mets but have continued on the same treatment.

Staying on the same treatment as long as possible seems a great idea.

My question is how do you convince your onc? What if he/she does not agree?

Thanks a lot

Lovexxx

Lucie

[TammyCross]

I have been puzzled by bone mets that become sclerotic. They are still there? Just inactive? My PET reports tend to say they are "healing." The healing looks pretty much the same as cancer, I thought my oncologist said. All my bone mets are "gone," but that just means they are inactive and I still have them? If I still have them, are they still considered cancer?

[TammyCross]

Thanks. No, not what I wanted to hear., but better to understand. My oncologist, as I say constantly, can't explain clearly. I have to take questions to another oncologist (there are two who happily explain what mine cannot) or the nurse practitioner. She did say that even if they don't see anything, the cancer is still there and will loom up if I stopped treatment. She also made sclerotic sound like healing. I will read what you said again -- and I looked up sclerotic -- and eventually sort it out.

[TammyCross]

No, where I looked, it differentiated and gave different explanations. Wasn't looking at the other.

[Lulu4545]

Hi Sandra,Thank you so much for the further explanations.

I live in France and my reports are in French.

I had 9 hypermetabilic lytic bone mets - suvmax from 13 to 26.

Last pet I had no pathological residual hypermetabolism on osteocondensant lesions- complete metabolic response.

My GP told my mum it was a miracle.

But as you say there are no miracles- it's uncurable, it's obviously waiting to pop out again. Just have to accept living with that.

My onc said pet every 4 months to see what we change for when progression- count median 20 months on ibrance.

What scares me is that all my mets shrunk/disappeared/became inactive between first pet and second pet in just 3 months.

I have the feeling they could all come back just as fast.

Anyway, not much I can do, not much anyone can do...

Have a nice xmas

Lovexxx

Lucie

[TammyCross in reply to Lulu4545]

Lucie, it happens! It is good news! Three years in, where I had a really large tumor, there is no evidence of it. All my many bone mets are inactive. I had trouble relaxing into it until my oncologist insisted. She is not an upbeat person, and insisted the cancer will eventually find a way around the treatment, but who knows when. Enjoy it while it lasts, and i may be years, not three months.

Chris