Metastatic Newbie…Not Where I Want to Be🙂

[Leefromct]

Looking for any helpful advice or suggestions. I had early stage breast cancer in 2002 and was cancer free until 3 months ago. It has metastasized and is now in my right lung, pleura, bones, liver and nodes. I have been on Xeloda for 2 months , 1 week on 1 week off. No side effects so far however I just had a cat scan and no change. I also take Letrozole daily and Zometa once a month. Thank you.

[Bestbird]

I am sorry to hear of your recurrence, but it's encouraging that you had such a long disease-free interval. I was diagnosed with MBC in 2011 after 18 years and had metastases in my lung, as well malignant pleural and pericardial effusion.

Although two months is still early to determine whether treatment is working, the fact that the disease hasn't grown is a good sign.

If you are interested in learning about approved treatments by subtype, cutting edge research, contending with side effects, and more, you may want to read my book, "The Insider's Guide to Metastatic Breast Cancer" which is also available as a complimentary .pdf. For more information, please visit insidersguidembc.com

I hope you respond very well to your treatment!

[blms]

Where do you live? Always looking for someone close by! I am outside the Washington, DC area. How much of your liver is involved? I too have liver mets, bones, omentum, lining of my lung, pleural fluid (but that is minimal). Have you had any liver nerve pain? Did you have a liver biopsy?

[Leefromct in reply to blms]

I am from CT. The liver involvement is minimal . No pain and no liver biopsy yet. We have similar areas affected. I am ER+(weak), PR+ and HER2-. What are the features of your breast cancer? What treatment are you on? What are the side effects have you encountered?

[mariootsi in reply to Leefromct]

I am in CT. Where do you live. I'm by the water in Branford!

[Leefromct in reply to mariootsi]

Hi I believe you’re the angel mentor that recommended this site for me.

[mariootsi in reply to Leefromct]

Oh! I'm so glad you are here! Welcome! You will learn just how amazing this site is!Love,

Marianne

[blms in reply to Leefromct]

ER+, PR+ HRneg Bones, liver extensive

Currently on taxol 2 weeks on 1 off. Working well so no changes. Side effects have been very minimal so far much better than Ibrance. I actually hike to stay in this for a while longer- at least I know what to expect

[Phillipians4and6]

Good morning!!! While this is not a place we want to be this group is a great place to be for all of us thrivers. You will find love, support and prayers here. Praying for healing and peace for you today.

[Leefromct in reply to Phillipians4and6]

Thank you. That warms my heart.

[mariootsi]

It is always so interesting to me how many women here started out with early stage cancer!

[AvidBooklover in reply to mariootsi]

I agree! And we were told at five years you passed the cancer finish line...and now....back in the game. That five- year mark is a false threshold!

[mariootsi in reply to AvidBooklover]

It certainly is!

[cancersucks2]

Welcome to the group. I’m fairly new myself and I love these ladies. There is always someone to answer your questions and just be there. Stay Strong and be positive. Jane