Mom treatment

[Haneen2012]

Hi everyone,

My mom was diagnosed with stage 3c lobular cancer on jan2012. And has been Ned until she felt bloated on jan 2021. We found out she had peritoneal ascites and mets.

Her diagnosis has been very bad, her PET shows no active hyperactivity anywhere but in her peritoneal. But the doctors were bad and mean.

Long story short, she has been on paclitaxil for four sessions which dried up all ascites in the first session. And after that we pushed into putting her on ribociclib and femara.

We live in Jordan. And we have getting consultation from various places around the globe and many doctors agreed on this protocols.

I was trying to find any positive stories for breast cancer metastasis in peritoneal. But I couldn’t find.

I also wanted to ask, would her hair grow back while on kisqali? And I found out her toe nails has peeled off. Would they come back? What shall we do to help her?

[SabaAK]

Hi Haneen. I’m here for my mom as well and got lots of positive stories from all of these strong ladies here. I do understand what you are feeling and what are you going through right now. I hope you find a comfort and lots of answers to your questions as I did. I wish your mom being NED again for many many years❤️❤️❤️ How is her general health?

[Haneen2012 in reply to SabaAK]

Thank god she has been always active. Now you can feel that chemo is getting to her general health

[SabaAK in reply to Haneen2012]

Hope she will feel better

[Ardie1970]

I have no answers for you but wanted to commend you for stepping in for your Mom. I pray this treatment works wonders for her.

[Haneen2012 in reply to Ardie1970]

Thank you Dear.Amin to that.

[library2019]

I also had stage 3 breast cancer in 2002 was clear until 2019 when I also was bloated and they found cancer in the peritoneal now its called metastatic and I have been on 5 different chemos since then still doing well. My hair is growing back in curly, don't give up!

[Haneen2012 in reply to library2019]

I bet it was hard when you heard it was back.Can I know what type of treatments are you on now?

[library2019 in reply to Haneen2012]

I am on monthly doxorubicin a few side effect dry hands feet and nail and mouth sores otherwise its ok no nausea

[Haneen2012 in reply to library2019]

I wish you health and happiness dear. Thank you for responding to my post.Can I ask if you had your hair back after paclitaxol while on other treatments?

[library2019 in reply to Haneen2012]

no it started after the doxo about 6 months ago came back silver and curly!

[13plus]

I’m so sorry to hear of your mum’s new disease progression and her bad experience with the doctors. I have no experience with where she has her mets but I wish her all the best with the treatment. You could try a search through the previous conversations about kisqali by typing it in the search box - I’m pretty sure I’ve seen it mentioned elsewhere. Her nails might grow back, not sure about her hair, but the most important thing is to help her feel her best physically. I’m hoping others might have some things to suggest for her

[Thrifty51]

Hello Haneen2012,

I also have peritoneal mets and am now taking Xeloda. When I was first diagnosed with MBC back in November of 2019 the mets were in my bones. I took Kisqali for 22 months and became NED for about a year then the mets were found from a Pet scan in the peritoneal area. I started Xeloda in November 2020. I had a CT scan in March 2021 and the mets did not show up. My markers have gone from about 750 to 88 so that is promising and I feel good and am very active.

I thought hearing from someone with peritoneal mets might help,

Wishing you and your mother the very best.

Audrey

[Haneen2012 in reply to Thrifty51]

Yes it does help. Thank you for sharing this with me. I hope you’re back to NED as soon as possible.