Ibrance, rhinitis and post nasal drip. - SHARE Metastatic ...

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Ibrance, rhinitis and post nasal drip.

Flavia100 profile image
27 Replies

I must admit I’m desperate living with so much congestion. The drip in my throat is the worst. I am using a Netty pot several times a day, a spray of Ipatropium Bromide and And allergy spray. Does anybody have any solutions to this problem. Sometimes I feel like I’m drowning.

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Flavia100 profile image
Flavia100
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27 Replies

I am sorry I have no answers but I am watching this story to see if anyone has any answers. I am been like this for over 10 months . Nose sprays , pills sinus rinses etc... the post nasal drip is awful and the cough . I thought it was the ibrance BUT it was discontinued last November and the problem still persists. I am on total different treatment now. I have developed allergies??? And allergy pills only partially help it . I am hoping my family Dr. can refer me to an allergy specialist . During COVID it makes it a really uncomfortable time to have allergy symptoms.

All the best to you !

Luann

Flavia100 profile image
Flavia100 in reply to

I sure hope we both can get some answers to this. It’s really awful. I just went through allergy testing and I’m supposed to start getting shots but honestly I don’t think that’s what it is. But I’m going to do it because I have to try. Have you talked with your doctor about it? Mine has no answers

in reply toFlavia100

I have talked to my family dr , oncologist and a ENT surgeon, no answers. I have another appointment with my family dr in June and I am going to ask about allergy specialist . Luann

Flavia100 profile image
Flavia100 in reply to

Surely we can’t be the only one with this problem

in reply toFlavia100

I did have allergies before treatment of ibrance ???

Flavia100 profile image
Flavia100 in reply to

I did but NOTHING like this.

in reply to

Opps that was to say I did not have allergies before starting ibrance .

blms profile image
blms in reply toFlavia100

My cough comes and goes right now it’s annoying last two days

blms profile image
blms in reply to

I personally do not think allergy shots are the way to go when you have cancer. I took them before I had MBC and stopped when I went in treatment based on gut and primary doc said NO

Norma1959 profile image
Norma1959 in reply to

I believe it’s Herceptin and Pejeta that causes the awful dripping. My nose also gets very sore . I was advised to take an antihistamine and nasal cream . It helps a bit .

in reply toNorma1959

I will look into this , I have a phone appointment with my oncologist and should be restarting these medications , I have not had them in a month so we will see. Our bodies are all so different on how they react to the medications . When this all started with me I was actually on Ibrance and Faslodex , it was more severe then .

blms profile image
blms

And YES netty pot

Flavia100 profile image
Flavia100 in reply toblms

Yep...I'm using it about 4 or 5 times a day now ..Does help for a little while

blms profile image
blms

Feeling a bit tight in chest these day

mariootsi profile image
mariootsi

I'm using a nasal cleanse daily too.

Chico64 profile image
Chico64

Hello Flavia100..reading your report,and to answer your question. I went to a allergies specialist before my cancer diagnosis and she put me on Azelastine HCI nasal spray 0.1% it really works for the nasal . I used the pot..but it wasn't any help..also use flonase..and ZYRTEC for my allergies. I will add adding more vitamins D to my diet.has help also..hope this is helpful to You.

Flavia100 profile image
Flavia100

Thanks for your suggestions. I am not familiar with that drug but I go to see the doctor on Tuesday and will ask about it. I’ll try anything at this point.

HollyWeen profile image
HollyWeen

Hi @Flavia100.

My background - I was first diagnosed 2019, with breast cancer stage 4, ER+ PR+ HER- then was put on Ibrance & Letrozole and Xgeva every 3 months.

I had the same problem with nasal issues that I didn’t have before treatment and regular Dr. told me to take Zyrtec it’s over the counter.

But then in 2021 I went to Functional medicine Dr at Cleveland Clinic and she told me to start taking Biocidin.

Biocidin is all natural and you start out with one drop AM and one drop PM building up to 7 drops AM & PM. Biocidin is a natural antibiotic and has various forms.

Since going on Biocidin I have zero nasal issues and zero gut issues from Ibrance and Letrozole. They will be taking me off Biocidin after 90 days. So I don’t know if the nasal symptoms will return but for now they are gone.

Ask your Dr about Biocidin because everyone is different and I am not a Dr and note your regular Oncologist may not know about it so seek out Functional Medicine and or Integrative Medicine DR.

Flavia100 profile image
Flavia100 in reply toHollyWeen

I see there are quite a few different types of Biocidin. Which one did you use and did you have to have a prescription? I’m guessing no

HollyWeen profile image
HollyWeen in reply toFlavia100

Hi. No prescription but I would ask your doctor about it first. Even though it’s over the counter and natural it’s strong.

I purchased the Biocidin broad spectrum drops.

Also if you get mouth sores brush with Dentalcidin tooth paste and rinse with Dentalcidin LS in pump bottle.

Biocidin drops
Flavia100 profile image
Flavia100 in reply toHollyWeen

Replying back to ask you how long you took the drops before you started to improve?

HollyWeen profile image
HollyWeen in reply toFlavia100

I took them about 2 months before I noticed I no longer gad issues.

HollyWeen profile image
HollyWeen in reply toHollyWeen

I also stopped all dairy. I noticed dairy made me get worse.

Flavia100 profile image
Flavia100 in reply toHollyWeen

Ugh, I was hoping it was sooner. Both of my doctors approved it for me to use. I appreciate you posting about it

HollyWeen profile image
HollyWeen in reply toFlavia100

It goes by fast. Hope it helps you ❤️

Flavia100 profile image
Flavia100

Thanks, I see her tomorrow but I wanted to be sure of what I was talking about as far as which one. Where do you purchase yours?

Tam-56 profile image
Tam-56

I have had a runny nose since I began taking Ibrance and Letrozole. I sympathize with you as it is never ending sinus congestion.

Recently put on Azalastine nose spray also. It works better than Flonase for me.

Hope you feel better.

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