Mets in cerebellum: Got results from... - SHARE Metastatic ...

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Mets in cerebellum

BangorBelle profile image
10 Replies

Got results from brain scan at9.45pm (is my oncologist mad ringing so late with bad news?). Will hear more on Friday. Just wondering if anyone has had this treated.?been on chemo for nearly two years for spine, liver and lung mets.

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BangorBelle profile image
BangorBelle
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10 Replies
Sunnydrinking profile image
Sunnydrinking

Sorry to hear your news .... I guess you didn’t sleep much last night! Firstly I’m sending you a virtual hug ....

Let’s hope you hear about your treatment plan on Friday and let’s hope it sorts things out quickly.

Wishing you all the very best.

Jo xx

MyMiracle13 profile image
MyMiracle13

Hi. Just want to give you some encouragement after receiving the bad news. I also have Mets in the cerebellum and other parts of the brain. I had whole brain radiation (WBRT) done in August. 10 sessions. I’m doing well now.I guess you haven’t been told how many lesions there are. Mine was quite a lot, 21 in all, mostly very tiny but there were 3 bigger ones. If the number of your lesions is much less than mine (up to 10 I think), you might be offered (or opt for) Gamma Knife or SRS. I was wreck when I got my diagnosis but here I am 6 months later and doing good. Some of the ladies with brain Mets have done well for 8 years or longer. Someone on this site suggested I join the “brainmets sisters “ at breast cancer.org. That was very good advice and I urge you to do the same. I received lots of encouragement and tips from them. Will pray for you🙏Maria

BangorBelle56 profile image
BangorBelle56 in reply to MyMiracle13

Thank you so much for your reply. Glad you are doing well 😀

Tolife_18 profile image
Tolife_18

Hi, I know how scary it’s to learn that you have a brain lesion, and sorry you had to hear it that way. For me, it was found by accident during spine MRI. There were no symptoms. Brain MRI confirmed the diagnosis, and I underwent 1 session SRS. Fortunately, there were no side effects from the procedure and follow-up MRI taken 4 months later indicated that it somewhat shrank. Will keep watching it. 🤞

Hope that your treatment will deliver results without any side effects.

Wishing you the best. 🌺

BangorBelle profile image
BangorBelle in reply to Tolife_18

Many thanks

Rhwright12 profile image
Rhwright12

Hi! Good luck! I just finished 15 rounds of WBRT in December...Had some severe fatigue for about 2-3 weeks. Basically could have slept through January...😂 I think it was more the meds they gave me. Keppra and Mementine.

BangorBelle profile image
BangorBelle in reply to Rhwright12

Thanks. Hope you are feeling better now.

Canchondo profile image
Canchondo

I pray for you.

Should women with MBC have their brain scanned every three months? I had mine scanned when I was diagnosed with MBC. It’s been a year should I have my brain scanned again?

Thank you

Christina

BangorBelle profile image
BangorBelle

I phoned Dr at 6pm as I was gong out of my mind with worry as he said he would call on Friday. He confirmed two tumours in cerebellum. He made an appt for me on Mondays cancer centre at the radiology dept. But scared of those head masks.

Teddielottie profile image
Teddielottie in reply to BangorBelle

Thinking of you and hoping you soon have a treatment plan .Sending love x ❤️

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